Neuro disease after vaccine with Nikk

good so um today we're talking to uh nick uh in kent nick thank you for coming on i know you've had a busy time with uh with a family recently and uh i think one of those back to school now is he so you've got a bit more got a bit more time yes he's back to school yeah so so thanks for coming on nick i know it's always hard to share personal experiences like this but but you feel this is appropriate because other people need to hear this so we're talking about your vaccination history basically aren't we and and how you're feeling from that so time wise timeline wise you had an astrazeneca injection in in february didn't you yes i was um in group four because i have a low immunity um but felt fine was doing fine um really well um walked to my appointment at the local surgery to have my vaccination and the doc it was actually just by coincidence my own gp that performed the vaccination and um i sat down and he just ran through his how do you feel and i said really well and he put the needle in and i feel like i instantly said it i mean my circulation would have been going nice and brisk because of my walk and i hadn't waited long the appointments were running to time so it felt instantly i said oh i've got a strong chemical taste in my mouth and he just made a sort of non-committal sound and um and then i said to him i feel a bit sick and he said oh you'd better go and um sit outside where they weren't keeping people outside they'd stopped at that point you know the sort of standard weight for 15 minutes they were sending you home unless there was a problem but so i sat outside and um i i did the usual thing got my mobile phone out and thought i'll start you know replying to messages that i haven't got back to people and i just felt overwhelmingly sick and rushed to the surgery toilet and vomited um and then a nurse took me back in to see the doctor and i said to him i can feel shivers running up and down my body and it was just like a a bam bam bam of symptoms that you could argue were unrelated you know the shivering and then and the nausea and then believe it or not i coughed for a bit i mean it was it was just like a checklist of some of the covered symptoms or even some of the covert symptoms we now know um and then my nose ran you know just watery running instantly but the coughing and the nose running which they now talk about all the time as being classic covered symptoms i'd be surprised if they even lasted a minute or so each it was that fast but it was it was so quick going through my body and i can't honestly say at what point my head started to ache but i'm i had a headache when i was leaving um and they just said oh well you better go home and um take some paracetamol and rest and because i think their main concern was was my airway blocked um i didn't feel any swelling of either my lips or my tongue you know my throat so i couldn't say i felt like that but i felt dreadful and um i had to get a friend to give me a lift home and um my son was visibly shocked when he saw me because he'd seen me skip off to go and get it i mean and i really had you know we're we're walkers and i keep fit um and i don't know i don't really remember much about how i felt that the rest of that day apart from i know i felt dreadful but i do know that by 8 p.m which is far too early for my son to go to bed i said to him come on let's get you all sorted and do you mind going to bed early so i can switch everything off and you know lock up and because i said i don't think i can stay upright functioning for much longer and by that point i was shivering a lot um i didn't have much of a temperature at all it was just only ever so slightly raised and i just remember going to bed at about 8pm and just curling up in a ball and just shaking so violent violently and my teeth chattering so wildly that i and just like like that for a long long long time almost convulsing you know that i was but it wasn't convulsions i've seen someone have convulsions and it wasn't that but it that i just thought i'm gonna crack my teeth with with how violently they're banging together for a long long time i lay like that in bed until i just i just fell asleep so perhaps for an hour or so i was shivering like that with my teeth and i genuinely think i exhausted myself with it you know and i just fell into a deep sleep and i don't even remember waking up during the night even though it was an early bedtime um but the next morning when i got up i don't know the exact order of what there was a lot going on which makes it really hard to relay there was an awful lot going on i had a strong pain in my kidneys um which which from that point lasted about um three or four days of drinking lots and lots of water you know because i'm aware that that's something you can do for your kidneys um i've i felt incredibly dehydrated um now i know you will probably say if you have a fever you want to drink plenty so you don't get dehydrated but with low immunity i've had many many upper respiratory illnesses you know just regular illnesses lots of colds maybe with a bit of a temperature as well and whatever um and i'm used to managing myself and i'm used to um always drinking lots of water and being well hydrated as an absolute you know foundation of getting past any illness where you especially if you've got a slight fever so what i'm saying is it was different the level of dehydration was absolutely profound and i looked in the mirror and i felt that even my face looked more wizard you know and it's gone back to to what i think is my how my face normally looks and um my eyes were so dry they were scratchy you know they did just i just was so dehydrated so something about the process had really dehydrated me without me sweating because i hadn't been sweating and i don't believe i was sweating through that sleep because you know my night wear wasn't wet or you know like i've had the odd fever where your tops just drenched isn't it you know you know it wasn't like that it was just something and i don't know internally that had massively dehydrated me um and um when i got up um i just felt that i was in like a hamster wheel and i felt that the world was tumbling over around me um and i immediately fell on my bedroom floor and then got myself up again and felt i had to hold on to everything you know and i didn't i just felt like i was really quite drunk but not that i was just drunk but also that when you're drunk you're it's in you but i also felt i was in an environment that was moving as well so just like a ship because we've been on a ship you know and i know what that feels like when you're in a storm and the floor goes away from under you um yes so it was like that pretty horrible you see that sounds like you're describing a vestibulitis at the middle ear the inner ear problem that can uh um it can make you feel dizzy maybe but i've had labyrinthitis which will make you fall off a chair and things and it's very localized isn't it you're but this yeah it felt like the whole world was yeah no i mean it's i don't know but it's localized your everything in my head felt confused um in terms of perception you know in terms of where things were and my ability to do things and for example first couple of weeks i didn't drive at all because i didn't have control of my feet so i guessed it would be quite unsafe to drive nobody told me not to you know but i i could i didn't have proper function of um particularly my injection was in my left arm because i'm right-handed and it was my right hand side that was the weakest um in terms of um losing motor function which i i can't explain that and and tell me john am i right are your kidneys on your right they're on both sides they're on both sides okay the lower back wall i would say so kind of kind of upper back there kind of yeah yeah on both sides and i have had kidney pain in the past um with some hospital treatment that was intravenous so um so i'm familiar with the kind of region but in that case then if they're on both sides it would definitely be more the right hand cycles i specifically remember the pain because it was so if you have a few days of one localized pain you you just sort of remember it don't you um it was quite specific it's a deeply horrible horrible experience it was um this one on for two weeks or what happened after the two weeks nick well it has gone on until now it is still going on but it's all it's done is i would say um i have life has been so hard to just keep up with because of because of the physical battles and also because of the time spent trying to research to help myself um as well as all the normal things in life so um i haven't looked back until today funnily enough for any of my notes that i wrote i had this strong sense even though i'm a person who's never kept a diary in their life i was so terrified i thought i kept a diary and um so um and look you know a lot of it is i can't write my hands you know i can't control my hands and things like that um but i can't give you an exact time but i would say so it was february well i had to have an operation at the end of april and i didn't know that was the sort of deadline that i had to get myself this was just personal because um i wasn't being told this by anyone but i thought i have to get myself feeling normal enough to feel safe to have major surgery um and it was yeah that was ten weeks after the first injection so i would say i was just about feeling that i was strong enough in myself and i still trip over my right foot and i still have a lot of weakness in my right thumb in particular but in the beginning i couldn't move my right big toe i couldn't i had no i was looking i couldn't make it move at all whereas now i can give it a little wiggle and bear in mind i had full function of everything and you were more than that you were fairly athletically fit before this weren't you yeah yeah i don't know if i'd say athletically but certainly certain i i'm 50 and for my age i'm a fit 50. you know i um just because yeah i try to keep because of my low immunity i try to keep myself as well in every other way as i can and um yeah so so at the time did the gp take your blood pressure and your heart rate and your temperature and your respiratory rate they didn't do basic observations they they didn't want to see me um they they they didn't want no no i don't know um i i wondered if i could read you something which email i wrote um i'll try and let me find it um so there's a website i want to give you yeah this is it okay um have you are you aware of this website c19vaxreactions.com yeah thank you there's a us senator who i was watching him talk on youtube very moving speech and he was talking on behalf of people in his community who had approached him i imagined by a sort of mp type surgery you know who'd approached him and said that they had had adverse events to whichever vaccine for covid and um and they'd been left in whatever state of ill health and yet they were finding that no clinician you know no medical um settings were sort of welcoming them or wanting to help or interested at all so um i don't know exactly what happened to the wife of um i think it might be neurological actually because of the note i've written myself here after watching the youtube video i watched it in early september um but um they started a private social media group and wrote to the white house and media drug companies they got no response felt ghosted fresh frustration with not being heard um and i know the husband started the website c19vaxreactions.com um and i think they've got i don't know they had a lot of people approach them just to tell their stories um and i was in such a desperate situation that i um [Music] was doing anything anything at all to try and get someone to help me um so your gp didn't send you to a consultant so you didn't do the basic observations at the time you didn't check your blood pressure your heart rate your respiratory rate your neurological stages that wasn't done at the time and then you weren't but when you complained about these symptoms you weren't referred to a hospital specialist for an assessment no the gp um surgery eventually allowed me to be seen by somebody who doesn't ever work at their surgery um a young doctor um who i've never seen again and so it seemed it felt like i was just being passed on to the most junior person or transient person so they just haven't wanted to know and i'll give you an example i was in the gp um this week um banging my head against the brick wall again and um i said that um i said that my immunologist had said i should have a booster and um and i said um could i have that done here in the surgery and the gp said no no really that's just for um older people in the community um you know and i said but so i've got he said you can go to a vaccination hub and i said but i um i said and this was after a conversation that was really going badly wrong you know in other words i wasn't getting any help and i said to him but you can't have it both ways you're telling me i'm clinically vulnerable and i've got to get a booster and i'm so vulnerable which i don't feel well i feel it from my adverse reaction but otherwise i didn't but you won't let me come to my local surgery where it's best something goes wrong you can monitor me medical supervision yeah yeah rather than me drive myself somewhere where because you know i i there's some well i'd have to get somebody to drive me or something but you know it's just so it's just upside down thinking i don't understand it at all in everything they do every single thing the gp surgery has done when i've booked blood tests i turn up this has happened twice now since the vaccination um no no record of the appointment and so i i stand there and put my foot it's very hard to think it's not intentional i can't quite believe it could be intentional but um today i went in again and and i and i checked with the nurse and i said you are checking for immunoglobulin subsets aren't you because i said we're trying to establish that i'm not clinically vulnerable and i said and if they're normal i don't see how anyone can say i'm clinically vulnerable and um and and she said oh no that's not on there and that was left off last time on the 8th of november so not long ago it got forgotten last time so we rebooked you know my insistence to have them done this time and they were doing a whole they were doing albumin what's that for albumin's the protein in the blood right no it's it's what makes the blood it's what carries medicine it's what carries drugs in the blood and it's also what sucks the the water back in from the tissue fluids right right so that's the amount of protein they keep they refuse i i've said time and again after i spoke to you i said please can i see a cardiologist i've i have these racing feelings i i wear um a fitness tracker and um i'm kind of used to you know what that would be at and the one thing i've noticed unlike kyle who'd be really on to his whereas really i use mine for steps you know just to try and make sure i achieve minimum steps to kind of keep healthyish um what i have noticed is if i go upstairs here um it would go really very high you know which i think is very strange in a short space of time given that i used to do 60 flights of stairs in the gym before um you know on the stair machine before um the pandemic and um obviously i haven't done that but what i have done a little bit strangely with the lockdowns and all the rest of it is um i've had yeah we're back yeah yeah sorry carry on it was just a flick on the internet yeah so i'll carry on no i had to i had a goal of 30 flights of stairs a day so what i'm saying is it's not as though you could say oh well perhaps you you're just noticing because you're going upstairs but it's one of the little fitness things we've done in the home gym if you like the house consistently and so um i have noticed swings in my house you know and um yeah it goes up to a very high rate uh nick does it well i don't i wouldn't know a high rate from a low rate unlike kyle you know who knows yeah yeah you know fitness stuff but yeah for me it seems to go in one flight of stairs which is about 12 stairs it'll go up to 125. right does that sound a lot so yes it's much higher than you would expect for your level of fitness yeah whereas in the gym when i used to do my 60 flights which was a killer you know constant like this on the machine um i used to stop that was my heart was super fit you know but i used to stop at about 140 um because i was advised in the gym that that's a good kind of place to you don't you don't want to over exert yourself um so so you've lost your exercise tolerance there your heart rate is going up disproportionately to the activity that you're undertaking exactly right in fact i would say as a self-preservation um sort of feeling inside me i feel i have no ability to exercise at all and because i used to run as well and i i don't feel that it would be safe um when i walk up a hill i'm clutching at my chest you know the pain and then i stop and i have to go this is i just make this up you know but i'm a great believer in instinct in your body and things and i just go you know and that's what i feel i have to do and i just don't know until the pain subsides um so you get pain when you walk when you start exercising you get pain where do you get the pain nick um there right so it's the left side of your chest yeah yeah um and what sort of pain is it like is it like a gripping pain or is it sharp pain or that is sort of sharp issue but it's not like these little pinches that i get now but it's sort of sharpish but it's it's a frightening pain it's a pain that makes you stop and think that's not right that's that's all i can say it's not i've never had a heart issue in my life and it's a frightening pain you you just know it's wrong yeah i mean i mean this this merits a cardiological assessment straight away you should see a cardiologist straight away i a i've never been a hypochondriac i've never imagined life is too busy and i'm very i'm really really lucky i've cried a lot since all this happened because of the the torment of medical people not wanting to help you know the absolute torment of it and the frustration and and and the fear that there's something wrong with me and nothing's being done and i've also felt so i feel quite ashamed um and i try not to be emotional it's fine it's fine sorry no it's okay sorry to put me through this sorry um no i'm just thinking about kyle i've also felt and i feel guilty about this but sorry okay i've i felt quite envious of all these people that you talk to who at least are getting the tests and the help because i don't know certainly my gp surgery it's it's been an absolute turning they're back they do not want to know i've had so many conversations with them now and when i say so many since february i'm talking maybe eight okay i'm not obsessively phoning them every week you can't get through you can't get but but when i've had those conversations and i've probably only met face to face with them four times maximum and bear in mind the first time this junior doctor she said to me um uh that she thought it'd be a good idea if i bought crutches you know and i did go online then to buy crutch because i was four i couldn't make it she was right at the end she's being junior they'd put her right at the far end of this great long corridor and it was a really long way to walk and i was just tipping to the right all the time and and um so what i'm saying is they've seen me really bad um and um i can't remember what i was saying about it and the suggestion was to get crutches yeah yeah suggestion was to get crutches but but but they won't look and they won't and i go in and i say and i was very much you know you spurred me on i don't mean that as in you're sort of influencing me if you like john i don't mean that but i mean you gave me just when everyone no one else has wanted to know it was such a positive thing that you were even interested and um sorry i mean to me these are red flag symptoms you know if you know i i was a i worked after i retired from academia i was a staff nurse for three years on a part-time on an accident an emergency department and if a pain said to me i've got left-sided chest pain that comes on when i when i exercise and i've got pain now i would go and get a consultant straight away yes you know there's no question and then my consultant would almost certainly get the cardiologist straight away yeah these are red red flag symptoms i just don't understand why they're not merited the attention they deserve these need an immediate specialist diagnosis yeah well um the other thing is that something that came on um latterly you see they they keep they they say oh but you were fine with the pfizer so you can have a booster but i don't actually who's qualified to say i was fine because what i know a week later the chest veins really kicked in more so you had the fires that you had the pfizer in june in june yeah did you just clarify it nick did you having the chest pain before you had the pfizer yes it had the chest pain instantly from peaks and troughs from february with the astrazeneca never went away but i certainly didn't exercise because i was i was working on just being able to walk my son my son because he was off school we were walking but um it never went away the the gp has said oh you're fine and so is the immunologist without even seeing me you know said oh you're fine to have a booster but i said how can you say that how can you know it's safe for me and i said to the immunologist because he's in london i said you haven't even seen me for two years you know because prior to the pandemic they used to insist which i was mad you know a little bit baffled by they used to insist they had to take all my bloods my immunoglobulins lymphocytes subsets everything at king's every six weeks and i was trekking up and down this every three weeks for six or seven years okay pandemic came suddenly no it's not important we don't need to see which has been many people's experience more or less hasn't it if you've got something a sort of ongoing something that they think needs to be monitored and then all the hospitals closed down but i've actually been fine and i haven't had any intervention you know medically or anything and i've been okay and i believe i've had covid at least once right at the beginning or maybe twice and i also had the toes john because i phoned up my gp in march 2020 and said i don't know why but my toes gone yeah so so you know i really think and i'd had it prior to that so i think that's why i only had the toes and the headache but we didn't know about that then it was it was just an odd thing but anyway um sorry going back to um this is 11 months before your first vaccine isn't it you feel you had that you had the infection 11 months before yeah and and then and then um yeah 11 months before and also even before they even really say it was in this country because i was hospitalized with um not being able to breathe you know with low oxygen and it was a really strange illness and a lot of people around were strangely unwell which looking back it looks and then i mean march from my memory is quite a feasible time to have sort of had it oh no no no prior to much it was it was um september but i looked on on a problem right right legit website and there was a sars there was an unknown sauce covered thing in ashford in kent which is at the time you know where we were sort of having a lot to do with the full history of this is not written nick that's for sure we don't know certainly have you ever had blood tests to determine whether you actually did have covert have you ever had the antibody tests um no but when the first gp gave me my my astrazeneca vaccination he said to me don't know why i'm doing this because you probably won't make any antibodies anyway meaning because of my low immunity because i i generally have a sub optimal response to vaccines however the the thinking was that you might say it's safe and you might as well go for it anyway because you might make a few so i was perfectly happy on that basis um in i paid for um an antibody test in um it's the end of march so um it was halfway through february when i had my vaccinations so it was a good time period for me to have made antibodies and i had made some antibodies to the astrazeneca yeah i'm presuming it was to the vaccine yeah okay that that test would be antibodies to the vaccine well no they said that it was in a clinic um and they did say i can tell you the clinic i know it probably means something to you um but it was a proper one where they drew blood um but they did say the specific test i had although it cost a lot of money it didn't it couldn't actually tell you whether the antibodies were from um here you are it was uh it was this method even i had heard so um e-c-l-i-a right so but they said they said they said it wouldn't differentiate between antibodies from the various antibodies from the vaccine most likely though given that i think i had covid late 2019 and then march april 2020 i don't think my auntie book because they say do they still say that you don't keep your covered antibodies for long yeah the the antibody test may not have shown after about six months or so yeah but the point is that these reactions could be caused by all your memory cells which the b and t cells the b t members yeah which i choose to believe minor goods of those because nobody's ever told me they're not i might not i might not make excellent antibodies although i did make a few to this but in general i may not make the mo you know have the biggest antibody response but um there's nobody who's ever said no immunologist has said to me your bnt cells aren't functioning correctly so yeah i think that's right i think i have got natural protection yeah yeah going back to when you had first had this the this first astrozenic when you got this taste in your mouth yeah um do we know if the gp aspirated the the the needle or not he absolutely didn't and i think the problem with gps doing is that generally they don't dole out the injections no but very often they don't i think there's a financial incentive at the time yes yeah yeah and he just he just literally put it in done you know um very quickly um wouldn't even i don't think given that i've got a fairly sort of narrow i want to say flabby but that's a little bit unkind but i don't have i don't have a firm deltoid muscle there because i hadn't been doing my usual swimming because of however long a year of lockdown so the leisure center had been closed down where i used to swim all the time um so my muscle tone had gone in my upper body and the stairs wouldn't help that would they so no not really no no and i hadn't done anything with weights or anything so i'm just saying i think he would have struggled to find a um you know he may he may easily have missed them the muscle bulk yes you see if you if you get a reaction straight away like that to me it can only be one of two things it can be that it's gone through it it's gone into a vein and it's gone to your heart in seconds or it can be an allergic reaction that can be that quickly yeah so they were worried about your airway that's probably why they were worried about you error but that was okay you didn't swell up you your breathing was fine yes did you get any itching at the time do you remember no i'm not an allergic type person yeah so with allergies you'd normally get itching yeah every day i had the mildest um inflammatory well allergic type reaction which was um every afternoon for about the first couple of weeks my lips would start to sort of just swell a little bit and feel a bit tingly and then that would go down and that was in i just saw that in my diary today you know but this was in the days after it wasn't at the time yeah no no no in the days after for about a couple of weeks um that but i certainly didn't have a big allergic reaction and i would say john i can only speak for my local surgery or actually also the hub where i went for my second for my pfizer it seemed very much that all they're looking for in terms of adverse events is is are those type of allergic reactions and so my immunologist drove me to distraction the last time i had a um telephone um appointment with him when he said i could have the booster and i said and he said nothing you say gives me any re because i talk to him about exemptions you know and he said nothing you say gives me any reason to say that you should have an exemption because you're not allergic so so this was a consultant and he was only thinking in terms of allergies nothing else yeah yeah so it is it's just so disappointing isn't it just so hard to explain i mean i i think we conclude that that metal taste was because it inadvertently went into a blood vessel in that yes that that is a big variable in what's caused these these problems nick yeah um i really wish people would start listening to this and you know i have the same frustration i mean i i've written to my mp he wrote to nadeem sahara where i got a letter back from the dreams of high with a vaccine minister saying don't worry about it john it or worse to that effect you know it's like john it's like a moment of um comedy gold your video when you throw it over your shoulders but it's really funny that that's all the use it was nick i'm afraid and um tell us how you're feeling tell us how you're feeling now i feel unsafe i feel um hounded by got to have a booster got to have another got to have another and i don't feel that it's i i think um because the other thing that we've we haven't mentioned because i think it's unfortunate i've had so many symptoms but i think there were two things going on because i also had um prior to any talk of blood clots or anything like that um a sort of searing pain down my the side of my nose and above my eye this was after the astrazeneca was it after the astrazeneca and um i've never had a any kind of headache like that and it's written down thankfully the locum at king's the my immunologist who i've seen for 10 years who is an honorary you know high up lecture in immunology bags of experience um the minute he heard that it was an adverse reaction to a vaccine he and the team passed me on to this student who um who then rang me up very very nice young woman but no experience whatsoever in immunology you know but she what she did for me which i think is an important thing is she at least wrote down all my symptoms that i was relaying over the phone and when you read them now it's quite chilling because it's um it's um i'll see if i can just um see it here but she says that um and and bear in mind okay i didn't i'm not imagining this because i'd heard about these um what are they called cerebral venous throat and the natural cerebral sinus venous thrombosis yes sinus that's it i have never had a i don't really get sinusitis certainly not like that you know maybe the sort of dull headache up there with a really stuffed up cold type thing but i've never had a pain like this in the side of my nose and above my eye and um so she wrote this list of um symptoms from king's immunology but this locum i won't immunology registrar yeah i don't know registrars are quite senior they should be uh you know registrars are not junior doctors she told me she was new um so um and she didn't but but well even so i've been there ten years i've i've never you know i sort of know the main one and she yeah um but anyway she um well i'll read what she said she says um so i and this was with me pushing and pushing and pushing and this is dated 26th of february so just under two weeks after my vaccination and to my gp surgery i'm writing to kindly ask you to evaluate this patient who reported multiple symptoms which started immediately after having the covid astrazeneca um they are profound and getting worse that the symptoms are struggling to control her arms hands legs distinct taste in her mouth which comes and goes now that was different that wasn't the chemical taste still after the two weeks that was a kind of sweet taste that i had developed which sometimes i still get it comes back again you know less and less have you heard anyone saying no i haven't not an ongoing stream no i haven't no um not an unpleasant taste you know but um but not not normal no i've never had that but i but if you think covid does affect people's taste and smell doesn't it so maybe something in the mix that again because it seemed to bring out these symptoms and of course anyway um difficulty oh that was good you see i haven't read this because as i said i don't dwell i've forgotten this difficulty to swallow that was so frightening not because it was swollen but just because i i'd lost a lot of control of my muscles um and she's put although the patient is able to drink fluids eat food without choking coughing well you only have to choke and cough once don't you especially when you're on your own with no husband you know and just the child in the house absolutely and i think that's a silly thing to say because she said to me well have you choked took often i said no but i'm very frightened yeah um because i said i go to swallow and the adam's apple sort of thing won't you know it moves down doesn't it but it won't do that and it sounds like a lot of neurological control nick doesn't it yeah i am um but lots of um sharp pain in the left side anterior chest don't know what anterior means anterior means front as opposed to posterior yeah yeah that's so yeah um dry sore eyes decreased control of whole body more pronounced on the right side impaired balance the patient reported that she was about to fall down the stairs i actually did fall down a couple of stairs but i there was one time where i just completely sort of lost my bearings at the top and i've lived here ten years you know i've made it away yeah i wasn't moving fast either but i did nearly i just saved myself from falling down the whole flight of stairs um headache complaint of clumsiness bumps yeah kept bumping into furniture i've forgotten all this john you see so my motor skills have improved with work just with keep keep trying um feel like i'm being pushed over all the time urine is darker knows she needs to drink plenty of fluids um reported loss of power in hands could not write a letter i tried to write a letter to my aunt because she doesn't do anything technical you know and she'd she sent me a get well card so i tried to write her a little note back and i found that i couldn't hold the pen properly um hand felt exhausted up to her shoulder with messy handwriting feels fatigued and exhausted does not think she's able to have a stable walk not able to walk normally and bear in mind they i was saying to immunology who've had me in their care when i've not been as ill as as at this point wanted to see me all the time they didn't want to see me and you know it's just it just seems funny but pins and needles in the legs and arms and cramping pains in the legs and that was strange because when you're swimming a lot which i've always loved swimming sometimes you get cramped in your calves but this was a new cramp to me of cramping in my thighs i've never had that in my life and jumping of my muscles in my thighs particularly on the right hand side that was a horrible cramp and it kept happening and bouncing jumping muscles in my body for no reason you know but particularly did your muscles feel like they were kind of flickering on and off sometimes um yes they well when i would lie down at night um i was listening to um someone else actually do you know dr mobine yes yes yeah yeah i watched a number of his videos sorry john that was fine um but he and he interviewed someone actually who had the tinnitus yeah which i would say to you i didn't have however what i had was just this again it's like a bit lit it's probably not very helpful to a clinician like yourself to say this but when i would lie down in a quiet room at night um my whole body felt like it was going you know just the whole length of my body my arms my everything buzzing everything and i'm not in the first few um weeks after the vaccination i obviously didn't even think about having a drink a holic drink yeah because i felt so unwell and so i just wasn't in that frame of mind you know surviving literally on survival mode but when i first i like a glass of wine at the weekend and when never i really i'm not a big drinker but i do like a glass of wine at the weekends and when i had um when i opened a bottle of wine for the first time um and then the same the weekend after so i see a pattern i thought aha this is right i noticed that on the nights where i'd had a couple of glasses of red wine so friday and saturday let's say and then my bottle's finished until next weekend i'm quite quite disciplined very restrained yeah yeah yeah very restrained um so but but i noticed that this great jangling of all of your you know the nerves are so noisy everything's buzzing like my whole body's buzzing and it's a horrible feeling but i noticed it was kind of dampened down a bit and i remembered i knew somebody who had an essential tremor and she said to me that i remember that from years ago she told me this and she said um of course it's not a good thing to drink red wine but if i do have a glass of red wine i find that my tremor isn't nearly as bad and you found that it seemed to dampen down the symptoms a bit definitely but um but yeah so i didn't have tinnitus but i it just all sounds so so neurological nick you know because obviously alcohol is going to inhibit the functioning of the nerves and it's all consist you know this just demands a neurological opinion from a senior neurologist it's just such an obvious referral immunology i felt first of all that given that i was under the care of an excellent immunology team i felt they should be looking at and i've you know put it in writing to them at the time that they should be looking at what it is in my particular immune system that has allowed the vaccine to the safe vaccine to affect me so catastrophically you know and and it was utterly terrifying um but they immediately said no you tell and they wouldn't even in the past for things that i have felt are so trivial they've passed me on to different departments at king's let's say rheumatology or whoever which is what you'd expect yeah they wouldn't have to do that they they wanted to delay things this is my interpretation okay of course they didn't say to me we want to delay your care but what they wanted to do was write um to my gp surgery and then wait for the gp surgery who told me they had a three week admin turnaround of of receiving letters um and then he scanned them through their system you know it's just um to say to the gp that they should make a new a neurology referral and um when i spoke to this sort of transient gp there that i got to see about that she um she said to me well you're looking at a sort of six to eight month wait before you see a neurologist um because she said best and you you won't why would you go any faster and and when i um battered down doors to speak to a gp recently to get these blood tests um and to say could i please see a cardiologist having spoken to you john um she she said to me um we'll get a chest x-ray um i didn't really feel that would necessarily help my heart i wouldn't have thought so no no and um and she's quite an experienced gp i feel it's very difficult not to feel they're prevaricating they're doing everything but and i said i said yeah cardiologist my heart hurts you know and then under great pressure from no doubt a really irritating patient sitting opposite you know a patient who's demanded for once not to just talk over the phone but to actually mean they were already irritated that i'd said i had to be seen in the surgery she then organized this um and you'll correct me on it i never know which is um is it eeg or ecg when they put the little yeah um ecg electro and cardiogram or they call it akg in the states ec ecg ecg which which two weeks later that appointment then i turn up for it oh no record of that no record of your appointment and i absolutely and this has happened so many times and so i just i said well i'm not leaving i said i i told white line i said i can't come on any other day and it has to be done and so then the nurse came along and she said well i'll do it quickly and i said well i don't want it done quickly i want it done how it should be done i don't know how it should be done but i want it how it should be done anyway she sat me down because i'd waited because i wasn't i was i didn't have an appointment so because i'd waited a long time i was in total resting mode you know there was i i'd been sitting there made me wait about 40 minutes um because there was no appointment for me you know so they were doing me a favor and fitting me in even though i had an appointment and she then spent quite a while as anyone would sticking all these stickers you know on your wrists and your i think on your ankles or something and you know several on the front of my chair six yep yep and um that took a little while as you'd expect and then she said done and i said i said what have you done it she seemed to have literally switched the machine on and she said it's just a snapshot and she said yes in 10 minutes time you could have an event or 10 minutes previously you could have an event but she said this will tell us whether you've had a severe heart attack or not and she said i've got a 30 second snapshot well that that probably is about right it didn't just take about 20 30 seconds to record it yeah yeah right so so but but she said you're normal so would would well who said who's chief she said she said it looks normal well you would normally get a senior doctor to interpret an ecg yeah but but is it possible john that you could still have myocarditis or pericardisis and and that ecg would look normal or is it it depends how experienced the eye is that's looking at it right i mean to diagnose those conditions you want probably more sophisticated tests yes yes but i mean just to say that an ecg is normal it's not you know the there's still it's only one of several cardiological investigations it's the first one that you always do but you always get i mean i used to record you know on a and he would record a dozen ecg's a day no problem i would always look at it of course but you always get a senior doctor to uh to sign it off it's not yes you know it's not a casual thing it's not it's not like taking someone's blood pressure and just writing it down it needs an experienced um reader to diagnose from it and even even then sometimes if the doctors there weren't sure they get a cardiologist to look at who's yes well she's she said that looks normal those were her word she said that looks normal and um and then um my feeling is that that looks normal is the end of it so i said back because obviously i'm getting belligerent now i said to her but it's not normal what i'm feeling and what i'm experiencing so even if that i'm not disputing that may look normal but um you felt dismissed well yeah yes absolutely um and and i don't know why that i feel that it's going to be left so long that the next thing i'll be told when i eventually see some is someone is oh you've developed this recently you know um but the only thing i've got in my defense there is that i've consistently documented yeah i mean you know it's um it's really not um yeah it's very difficult to feel um that it's very difficult it would be easy to just put your head down and walk away and go okay then i'm imagining it you know um well i think you and me both know that you are not imagining these things these are genuine clinical features that you're describing yeah and also john the sharp pain when i breathe in yeah which is in the upper left as well i've never had that before in my life i don't know why it hurts to breathe in and when it was at its peak a couple of weeks ago everything slightly fluctuates you know it doesn't all stay but the heart pain never goes away sometimes it's more severe other times but since february it's never gone away i've never been without it but the um yeah the the breathing in so therefore i was breathing in a really shallow way because it was hurting to breathe in you know and again this this is a classic clinical feature that everyone learns well if you get a pain when you breathe in you know it's usually it's usually the the membranes around about your lungs the pleurisy or or the the lay around about your heart or pericarditis and you would investigate to find out which one it was yeah and and that the payment i would breathe in wasn't here or it was here you know so it was just in that one region um yeah yeah so i mean it's just so frustrating that you just basically undiagnosed we've got all these clinical features but we haven't got we haven't had a consultant to say what they put them all together and say what they mean and order the extra test to make a diagnosis no i think um there's a real um i don't know what it is i don't think i think that the gp surgery and the consultants that i have encountered are somehow not wanting to look at vaccine issues yeah it sounds a bit easier but inconvenient to uh to look at vaccine issues i think yeah yeah do you um you were saying something about the british heart foundation that i believe i believe they've got a they're getting a help group now we'll check on that and put the link on that but i believe there's like a self-help group that's formed under the auspices of the british heart foundation which of course is charitable so so so that would be good i mean for a self-help group for what and for anything in particular i i think it's for people with cardiovascular complications after vaccine or after after heart disease but i have to cover i believe so yeah i think they cover both and of course we're getting we're getting all these clinics around the country now to look at people with long code with these ongoing features and you've just so clearly got ongoing features yeah i wonder if that's worth a referral to that it would refer to the long covid facility that might be an angle to try maybe but um the problem i have is no one will refer me to anything i mean that's that really is the problem because we paid um a hundred and i think something like a hundred and thirty percent 135 pounds to go to a neurologist i had to pay because they said oh you'll just wait for so long so we paid to go to a private neurologist and it was i was only allowed to do that because we don't have private health care because um i was in that channel of you're permitted to get a referral to neurology because that has kind of already happened and we were going to do it on the nhs anyway so for example of course john it's not right it's really really wrong you know i've worked and paid into the nhs and everything i shouldn't have to be paying individually small fortune each time for private healthcare when i don't have it however i would pay to see a cardiologist but um well i'd kind of um i say i would actually but the neurologist i went to see wasn't open at all what he said to me was i don't think you've got a neurological disease i mean given that the clinical features you've described to me i just find that incomprehensible but i still couldn't understand why he was talking about because i wasn't turning up saying i've you know i'm finding when i wake up this happens you know no connection to a vaccination i was having neurological symptoms which i believe i believe there was some event that also happened um at the time because because of this feeling well i said um yeah that's what i was going to say this look this is what the king's um register i wrote down feels that her nose and she's put quotes will burst feels like she will have a nosebleed sharp pain over the right hand side of the nose and above the right eye and that was so specific and it lasted it was ever present for i don't know it didn't start in the immediate aftermath i'd say within the first week at some point that started after it was so searing the pain and so like there and you know and that a strange thing to say but feeling that it will best i just felt there was going to be an explosion of blood in my head you know and and that was before we knew about that see sorry i'd do my research um yeah and and objective learned a tiny bit i like to try and learn the jargon but it doesn't seem to thinking the another thing i had was problems with um speech and thinking you know like initially i'd say totally the wrong words for things um like um i i'd forgotten that but it's in my diary you know my that's speaking to my son and just saying well i think one of them i wrote down i said box when i meant shoe or something you know that and and you think okay shoe box so maybe there's that connection but i don't normally say silly thing you know there were lots of things that i was saying incorrectly um but um what was i going to say the blood tests that i insisted on happening um within it would have been within two weeks of um the astrazeneca vaccination because i felt at minimum they should be looking at my blood and i really had to fight for this and they only did absolute cursory basics of you know your full blood count whatever however my platelets were 427 or something and i've got 10 years of platelets from kings and i've also had subsequent platelets which my normal would be around 350 or whatever so that ties in i think i'm writing saying with the dehydration and you know something obviously had happened um yeah so it sounds like a concentration effect that you had slightly more platelets than normal yeah um it's never it's never rocketed up that high it's not typical to me at all it might be typical to other people but it's not to me um but i think um yeah oh well i don't really know where it leaves me to be honest with you i don't know i mean i don't think we have answers this is the problem we want answers we haven't got them um but i think i think what you've achieved today is you've there'll be a lot of other people can relate to what you're saying and you know we just need to get people to start taking this seriously as a medical problem to get it diagnosed and to work out what the best treatment strategies are and i think that's that's going to be the next challenge but the immediate challenge is we just need to get people believing you know when the patient says i don't feel i can feel my heart then we have to believe that this is true and and investigate accordingly yes um you have to believe what your patients tell you presumably for me it's not too late for that to happen they um you you need you need a neurological and a cardiovascular cardiologist uh full assessment yes yesterday as far as i can say yeah um yes i mean if i had to choose i really would choose the the neurological side of things i feel are just computer glitches now where sometimes when i'm tired i start to stumble over my words again and um yeah i know that my my thumb on my right hand side it's not i used to think the space bar was broken when i first started using the computer again but what it was my thumb wasn't pressing it down um i mean these aren't clinical features your brain's going to make up are they these these are genuine features that need to be assessed and diagnosed and also i know for a fact because i know someone um sadly who had multiple sclerosis she's not with us anymore but she um so i know your voice can go and um and the thing that really upsets me was well one of many things but kind of personal was that i've lost a chunk in my singing range where i have no there's no oomph there's no nothing there in the muscles of the voice box you know so that's it's improved on what it was in february um and and again as with the as with the drinking alcohol it wasn't something i even thought of doing for a number of weeks if not a month or so i didn't think of singing my life was turned upside down you know but um when i did sing to something i saw oh my goodness i can't sing anymore you know and i've done that my whole life just yes it's an important thing for you yeah yeah so that's neurological as well i believe yeah well it sounds like absolutely and and also john um the my dentist said that the astrazeneca moved everything so much and i've got all this pain in my neck and everything um a lot has shifted that um i've gone you know nearly 50 years or have when your teeth come out anyway so now i've got an extra tooth has come through because everything's shifted that's that's objectives that's nice like muscle spasms or something i don't i honestly don't know but there's so much pain in my neck since it but if you google it yeah it's made space for a wisdom tooth yeah yeah but if you youtube it or there's there's surprising number of people with incredible neck stiffness and on the side of the vaccination so and but but for me a tooth came through and also i never wore glasses before and and my eyesight went you know this this you neurologist that i saw said to me um you um you say you're you can't see very well and i said i dramatically can't see very clearly at all everything's blurred you know far away and whatever anyway i eventually went to an optometrist and um she said that not only do i have um i have a prescription for distance and clothes where bearing in mind i didn't need any glasses before but also now we had to go i had to go back again and she said what's happening with you and she said these were her words she said the astrazeneca has weakened your eye muscles so much that the range that an optometrist would work within where they like the um person's eyes to do a little bit of work to keep up they don't want to make the glasses do everything she said but your ability for your muscles as are so poor now that um you're outside that range so we've we need to give you extra help and so those things are objective you know um a tooth coming out and not out you know coming down yeah and and also my eyes um you know i think it was quite a profound assault on my body my whole body because there's almost nowhere that you know you name any part and i can affect it everywhere yeah yeah not particularly my stomach um i would have to say actually cast iron stomach good nick thanks so much for that and i'm sure a lot of people are going to relate to this and we'd love to hear from you again you know whenever you feel like it a few weeks or a month or two down the line and tell us tell us how you are and um i suspect we're going to get a lot of people commenting yeah you know i feel embarrassed about crying um you know it's up to you we've got that we could cut that out if you like you can decide well no but i think i actually think it's important i think it's important because i i'm strong and like mentally i'm lucky that i'm quite strong but i'm aware of people online who you can just see they've been adversely affected and actually they don't even if anyone puts you know throws me a rope i'm still wanting to take it i still hope that i'll be helped and i'll be improved but you can see some people i see the odd comments you know where i do share in the comments that something bad's happened to me and someone else says yeah that happened to me but you can just tell that they're really in a dark place um whereas i'm not in a dark place every day and i try to think positive but it's really hard it's really hard when you feel that the medical the medical sort of well the nhs or whatever around you that you felt was there if something went wrong yeah has abandoned you well i'm hoping this is going to help to change that i hope so john i hope so and can i tell you one last thing to educate a light note um going back to aspiration um did you happen to see yesterday on youtube there were various videos covering the um covering the vaccinating going on in vienna in the brothel i didn't no no no so it was fascinating because i did what you did with the footage from china yes yes i remember thinking when i watched you with the footage from china and you said i'm going to slow that down because i've now experienced this and you obviously know all about it but you can so i was rewinding and i was looking again and believe it or not in the brothel in vienna yesterday which was covered by a few youtubers if you look closely they put the needle in and then they quickly just slightly draw it back yeah and then they've like so they even aspirate in vienna in the brothel i'm going to look at that nick thank you for that you must you just do vienna and brothel um and the other thing is john tell me if you know this um it will be really really interesting to see the data from denmark yeah there's a professor in denmark who's collected this data and i have emailed him and i'm just waiting i'm waiting for him to get back yeah they are yeah i'll wait to get that back i'm hoping to get that back soon yeah and uh also there's jim who's a journalist in taiwan who's checking this out because it looks like they're aspirating in taiwan as well so i'm pretty soon i'm hoping to have data from denmark and taiwan yes and uh i i am i'm pretty convinced it's going to show less vaccine side effects even if it doesn't it's just a variable to get rid of now i'm not saying i'm not saying this is caused by intravenous vaccination we don't know that this is the whole point it's a variable we need to account for it's a variable we can get rid of so easily i just find it so frustrating that it's not being done but i also find it one heck of a coincidence that you and kyle both had that metallic taste within seconds yeah i call it chemical but you know i mean it's it's just something in your mouth yeah it's an artificial taste um it's not like food because you get that you get that i've noticed that since i was about 19 giving intravenous injections or watching intravenous injections when i was 19. you know that some drugs the patient could say oh i can taste that but it's because it's going around it's because it's circulating to the tongue within about 10 seconds yeah um and so but no it will be i i agree with you i think that the figures will be lower if they really have been doing that in denmark because they've rolled it out to almost everyone including children haven't they ended up i'm pretty sure they have it was a directive from the uh i don't know the names of the authorities but the danish medical authorities and the danish nursing authorities yes both sent this round out as a strong advisory and uh i very much suspect that they have actually done that so um john do you think there's any hope we'll get it changed here um if there's data from denmark and taiwan yes um the the they might sort of tag it on as a recommendation right i think that's the best we can hope for but as of now there is no sign of it at all no and the um lead nurse who was dealing with secondary school vaccinations 12 to 15 year olds um in relation to my son's school um i i was lucky enough to with persistence get to speak to her on the phone she was a lovely woman and she's been 15 years vaccinating and in charge of these type of programs she said to me she'd never aspirated on anyone ever in her life and so she was surprised her but she would she wasn't hostile she she was very pleasant but you know um i just think it's so important for me that's correct that's correct following the world health organization guidelines but i started doing uh when i was young i started doing thick oily internal muscular injections yes and with those it's absolutely vital you aspirate now the world health organizer organization did say that for pediatric vaccinations you don't have to to aspirate i think they were wrong but that's the guidelines they're saying yeah the thing is these vaccines are micro-particulate these are different physical factors to the ones we've been using before and if you if you make it sorry we've looked at good scientific evidence that these micro particulates can cause inflammatory reactions in the body yes and if you make it if it's if you deliver it intravenously you're you're sending it to locations it's not supposed to go absolutely is it is supposed there's no data on that is there no well only in animals it's never been done in humans because of course it would be nice yeah yeah but yeah it might it might get pericardium yes so it's supposed it's supposed to stay in your of course it's supposed to stay in your deltoid muscle and it's the cells in the deltoid muscle and the cells and the lymph the lymph nodes that are supposed to make the antigen yes the spike protein analog which the immune system recognizes as being foreign it's not supposed to make it in your heart or in your liver or in your kidneys no where else no and i think i think that's a big part of this problem but as i say i'm more than happy to be wrong but it's just a variable we need to get rid of yes thank you thank you i've kept you talking for far too long no you decide no not at all it's been it's been it's been a very um complicated it it is ten months it is and you really can't rush uh we've managed to condense it down into an hour and 12 minutes which is sorry no no no no it's brilliant it's brilliant thank you and uh but basically i'm i'm just hoping people relate to what we're saying i hope so and if anyone stays to the end they can hear about the viennese brothel indeed yeah we'll put that on as a as a as a teaser or something in the comments yeah thank you very much whenever you want to come back and talk again you are more than welcome thank you i hope i'll come back with some news and so do i i i hope we'll meet you with a gopro on a jog yes and please yeah yeah please um carry on with what you're doing thank you so much for everything you do i really appreciate that thank you bye

Channel: Dr. John Campbell

Views: 1,651,833

Keywords: physiology, nursing, NCLEX, health, disease, biology, medicine, nurse education, medical education, pathophysiology, campbell, human biology, human body

Id: lB5oR2gFQEw

Length: 73min 6sec (4386 seconds)

Published: Thu Nov 11 2021

Reddit Comments

[u/jcap3214]

Disturbing. I wonder how soon it's going to be before they start labeling Dr John Campbell as an antivaxxer. He's been very provaxxer from the early stages of the vaccination rounds too.

Smart people make adaptations and adjustments as new data and evidence are unraveled. But now, if you're not sticking to a static version of a "science" you are, anti-science.

[u/Spottedinthewild]

He’s not a medical doctor