Follow-up Patient Interview - Neurological Issues After Vaccination

from doctorbean.com welcome to one more show so we have with us sean once more you have heard sean before um sean welcome thank you so not this is a little sober and sobering discussion so please bear with me this is specially for trying to figure out patients who may have long coverage or who may have injury after the vaccine and how is their journey and what are the possible solutions they may be looking at where are the areas of challenge where are the areas of hope so uh sean can you please tell us a little bit about yourself and there is a video of you before as well but just to refresh right so just in brief because the other video we really went into extensive details about my experience but i'm a nurse practitioner based in the northeast of the united states and i received a dose of the pfizer vaccine back in december of 2020 december 29th to be exact it's ingrained in my memory now because i just passed a one-year anniversary and i'm still symptomatic uh with uh symptoms from uh the vaccine so after the first dose in quick summary i had paresthesias pretty abruptly after the injection in my right deltoid those paresthesias were like numbness tingling like a cold and warm sensation up and down my arm it progressed into the right side of my face with some tingling and then some flushing of my ear subsided after about 10 days saw a neurologist who said you know since it's since things have see everything checks out your emg is normal your you know routine labs were normal if it subsides in 10 days you know you should get the second dose so on january 19th i got the second dose it exacerbated all the neuropathies again on the right side um into my face i got tingling in my throat like a prickling sensation in my throat and then by day four day five i started to hear chime sounds in my right ear so i was developing tinnitus i started to get erratic blood pressures tachycardia and then severe abdominal pain and by december 30th i went to an emergency room seeking treatment telling them i think i'm having a reaction to the vaccine but uh the er doctor wasn't familiar with vaccine reactions and didn't think there could be such a reaction like this um you know because he hasn't seen it before and i was trying to make the case just because you haven't seen this kind of reaction before it doesn't necessarily mean that it's not a reaction anyway i was sent home with ibuprofen and then things just progressed after that the tinnitus increased in severity ran around top hospitals across the country looking for answers not finding any getting very discouraged symptoms kept progressing i developed positional orthostatic tachycardia severe intractable insomnia adrenal dumps the list just goes on and on i continued to have labile blood pressures by august uh i developed generalized body neuropathies stinging and burning in my hands and feet prickling sensations all over my body like uh like i fell in a bush that i was allergic to i even had prickling in the inside of my nose and that was very unusual it's very pronounced i mean i my hands and my joints my would hurt so bad i couldn't even open up refrigerator doors i um yeah so i just continued to worsen um over a period of not like nine months symptoms waxing and waning when i developed the neuropathies i got of course alarmed i saw a rheumatologist who put me on steroids unfortunately it was prednisone and i reacted very poorly to it but the first few days i was on it it started to calm down some of the neuropathies i was having but it didn't fully resolve so that's kind of a brief summary of the symptomatology that i experienced after the vaccine so um sean since then to now um what is your current state now we are all hoping we are praying that you compared to last time you met us you are feeling better and you're improving so i would request two things if you will one what is your current state and two what are the medicines that helped what are the ones that didn't and again for the listeners it is important for this information to be available it is important for others who may be suffering to be able to hear and see where hope is and where hope is not so please don't use it as a medical advice give it its own right that it can reach someone who might get guidance from it so this is not a medical advice this is not a doctor-patient relationship this is a patient who has the courage to come out and and share with you what their journey is to see maybe someone else can be saved by this message so sean what is your current state so well let me just add that my prior state was that i was very healthy i'm a very healthy uh fit young 52 year old male and uh had no real illnesses prior to the vaccine i had no chronic medical conditions i wasn't on any medications at the time of the vaccine so generally very healthy never really went to a doctor for much of anything unless i had a bad cold or flu um so over the course of the injury i i started really floundering because no one really knew what to do with me i i saw so many ear nose and throat doctors i went to many neurologists immunologists a lot of the routine tests were that would come up for normal and i thought well okay that's some in some ways reassuring but in other ways very disturbing because i knew something was wrong i just couldn't get the lab evidence to show what was going on and then you know the more i the more doctors i saw the more of the same labs they would run and i would get very frustrated i'm like stop checking me for lupus i don't i know i don't have lupus i know i don't have these known diseases i have something yet to be known you know it's it's a unusual vaccine reaction so over the course i tried various supplement regimens i went to also alternative complementary and alternative medicine i did lots of like low histamine antihistamines immune modulating supplements um so for months i was just left in that realm then by july i saw a neurologist who put me on a low-dose natal which is a beta blocker which seemed to help my pots a lot it helped to control my heart rate and that alleviated some of my symptoms by july also my tinnitus it sort of went like a bell curve or i would i should say yeah like it it's like a bell curve it it kind of gradually escalated went to a very suicidal level and then started to trail off and get better but when i exploded later on in august everything ramped up again my tinnitus came back to a to a higher volume the pitch changed to a to a higher pitch so i started uh just what therapies uh to continue on that realm i start i took some natalol then when the neuropathies occurred i took some prednisone didn't wasn't reacting very well to it went off of it and then was kind of again floundering what should i do and i i was working with a very good neurologist in new york city who was one of the first people to first believe me and have some sort of idea of you know what kinds of things were going on she couldn't give me a diagnosis but she she knew how to label some of the components so she knew i had positional tachycardia she suspected small fiber i did a small fiber biopsy that did show some nerve loss at the level of calf and thigh but it wasn't totally definitive they didn't want to say it was totally definitive for small fiber but i was in the less than fifth percentile for my age so together we discussed discussed the possibility of trialing immunoglobulin iv so i started at the end of september and i noticed when i started to do it my tinnitus would spike a little bit and i would get a little bit nervous because if you have tinnitus you know that's very debilitating uh symptom to have for for people so i got scared and i kind of said okay let's take a step back i only did half a dose i said let's let's think about it end of october we decided to retrial it again this time using uh iv some iv steroids on board and that was when i did my show with the last show with you and i i developed every side effect almost possible to ivig i had hemolysis mild but i turned jaundice as you remember i was on your show with a little bit jaundice i got phlebitis and a clot so um so some not all great things with it but i will say um it did resolve seem to resolve a lot of my neuropathies so after two treatments or i should say one and a half treatments almost all of my neuropathies were well they flared exponentially in in the beginning they calmed down and this is uh when that they calm down so probably around in the beginning when i did the first half dose everything exploded i had like burning skin um up my neck my face my hands prickling again everywhere um and then i would say probably two weeks later calmed down then when i did the second dose i had all those side effects but again i had like a period where things calmed down i had about two weeks where i was symptom free other than the mild tinnitus or not mild but moderate tinnitus um so that gave me some hope and i thought oh this is you know possible course and then um because i reacted so poorly to it they they did we decided iv was probably not the best option i wasn't tolerating that brand and i wasn't tolerating the iv root so in discussions with neurology we decided to try subcutaneous aversion so i did uh i think now four four rounds of subcutaneous immunoglobulin every time i do it i do flare and some things worsen and then things calm down so right now my tinnitus is flared and i have headaches but my facial paresthesias are at bay um my hands and my feet neuropathies are resolved i have very residual right ulnar neuropathy mild intermittent that comes and goes but very mild so some success not a total i would say not a total win got it and uh when you say that after every dose you have a flare up and then things calm down is that relative to the flare up or do they calm down compared to before meaning at the end of the day do you feel that overall just like you said things are dissolving overall you kept becoming better but you would have bumps of the flare-ups yes exactly so and i would do a dose i would flare and then with with this x amount of time a lot a lot a lot of it would calm down and better than before and better than before but the neuropathies had after the second big dose with the steroids the neuropathies kind of really the body neuropathies kind of really dissipated quickly the facial stuff uh remained in some of the right arm stuff so i think what's interesting to me is that the places where that i really that where i really was affected early on with the first dose the parasthesis those are the places that are the most uh most um problematic for me they're they're really they're the places that flare the most they're the places that seem to be um uh not responding well to treatment so like i have some patches of numbness and skin kind of tightness feeling on my elbow and my arm where i was injected and then the right side of my face uh the skin will feel like numb and tight sometimes i can trace the actual nerve that's irritated it will go along down my midline of my jaw over under my eye above my eye into the corner of my lip and it's kind of it's kind of strange that you can actually almost feel the the exact nerves that were affected and it is actually my wife has this issue going on as well since her vaccine and one day she was saying it to me that here i have this burning sensation and tingly sensation and she thought it was difficult for me to comprehend where so i picked up the facial nerves and and i said here and she was in a shock she looked at the picture and she was in a shark saying yeah yeah this is the exactly areas where i get these and i can actually and the muscle twitch is going on as well right so um sean can i ask you for a few drugs um i'm gonna probably see the eye recover protocol and what are the things there dr bruce patterson's so have you tried for example you tried fluvoxamine that didn't help right i did try that for three weeks low dose naltrexone i am taking low-dose naltrexone i found some marginal benefit for that in product uh steroids any continuous therapy or off and on i did bursts of steroids i remember in february and march i did but they were always low dose like medrol dose pack type steroids like you know not not like a very high dose long duration type steroid until august when they trialled prednisone and then it wasn't my uh i wasn't taught my tachycardia wasn't really exacerbated the pots i should say got it and um how about statins so i did do a consultation with the patterson group and i did take prabhastatin and i did trial ivermectin um for i would say two two weeks three weeks and um i didn't really see much uh benefit in my case maybe i didn't do it long enough um but i didn't uh and yeah and did you also try statins i did pravastatin and how was the reaction body's response to that i mean i tolerated it fine i just wasn't keen to be honest at myself for a long period um so i didn't do it i did it i i did that with the ivermectin for about three weeks got it got it so and again i'm not making these as recommendations to other people these are things that i did in consultation with you know my own medical consultations and what works for me might not work for someone else everyone should consult with their own medical teams absolutely and the reason for me to bring those drugs up is that so that when someone is hearing they might be able to go to their doctors as well and say here is a patient who had tried following things and i have tried them or i want to try them or i didn't work and maybe something else so it may be educational or useful for a doctor yes it is one case it's not generalizable message but still it may help some doctors to learn more because sean i believe that you yourself have been in uh research and so you have been doing a lot of research and trying to figure it out correct i spent a lot of time uh doing my own research guiding [Music] my own doctors because they you know i mean we have to face it doctors see a plethora of patients right with a wide range of um diagnoses so not every doctor has like hours to spend every evening just to research you know my case they have you know people with other diseases too they have to see on top of so so i try to you know educate them send them articles that i find are are um that might be of use to them to guide them um and then discuss you know the the benefits versus the risks of different paths got it luis grande has a question uh muravidok have you tried murabidoc so far i haven't i have not got it and is there it was on my list of things to trial i just i think for me the timing when i had the results from that consultation for that protocol i was already segueing to ivig and i really thought that that was for me with my uh range of symptoms was seemed to be the best approach at the time got it got it so do you have that on your plan now to discuss with your doctor about that so if i if i decide to pause the ivig and the symptoms worsen i think there are though that's in my toolkit of options um i think there's a few things that i've been looking at in consultation with different doctors i think one is you know that protocol another is looking at apheresis i recently did some testing i sent my serum off to germany where they are testing doing more research type testing and they run the labs on different auto antibodies and i turned up positive for numerous uh that are in line with my symptomatology of pots and uh neuropathies so i'm gonna talk a little bit more about this is that the cell trend labs yes that was the cell trend lab so these are um igg labs so if i don't know if your audience knows but these are great if we can discuss this a little bit because it might help once again some right so they test for things like uh you know the alpha adrenergic receptor antibodies for anti-ace ii antibodies muscarinic antibodies and i was positive for almost all of them that they tested except for i think one of them i don't remember exactly the exact one were you positive for nts2 as well i was i was only negative for anti-alpha 2 and adrenergic antibodies but i was positive for anti-alpha-1 um anti-beta two um anti-muscarinic cholinergic receptor one and two and three and four and five and i would a lot of those are in viscerals and blood vessels and yeah your blood vessel must be vasoactive incorrectly correct and then anti-ace ii and anti-mass one well so the nt is too and have you had a follow-up as well or is this just once um so they just run the labs so they don't offer you any medical guidance or advice they are just a clinical research lab you send your serum there they send you the results it's up to you to get your own medical guidance on the results got it so i did discuss them with some medical professionals and some were like well you know they're igg what does this mean they didn't know um then they were like well you had ivig maybe you acquired some of these passively through the ivig but i i said hey look there's a lot of other people injured like me who have also sent the la their blood their serum there for testing and they have not had any treatment and their tests come back similar to mine so just me thinking a lot these are not just ivig possibly because one your symptoms are with others too number two ntas2 can be generated by vaccine or by covert generally the paper that i discussed a few days ago and i'm actually to go meet dr william he's in uc davis here i corresponded with him these would stay in in 94 of the hospitalized patient and 40 percent of the outpatient these develop and then go away within a few weeks but in some people they don't go away that means immune system gets stuck in continuing to produce them for whatever reason and that means they would continue to behave like a spike protein and they would have the liberty which spike protein usually will not because spike protein cannot run around without getting noticed by the macrophages but these can go around get connected with the blood vessels they can get connected to so many places and behave with work with as2 and similarly when you are talking about the adrenergic and muscarinic receptor antibodies these can either block them or or trigger them depending upon what kind of bonding they are making and that in turn can cause so many visceral reactions including parts and tachycardias and blood vessel activity can change alpha 2 and alpha 1 and beta are all in the blood vessels and that can change vaso activity my point is this is these are important things to follow and for the audience this is cell trend i have no financial or no interest with them i actually reached out to them on sean's asking and i requested if they can join us they said yes we would love to but then did not respond further and that is my total interest sean is using them some other folks and me after listening from me that i talked to ourselves and they said hey we did that too and this may help so cell trend is a company that looks at your your takes of blood and sees what kind of antibodies may be generated and what kind of effect they can produce your doctor can interpret sean back to you the question that i had was did you do multiple cell trends to see if the for example nts2 are supposed to go away after a few weeks are they persisting hanging in there or so have you tried that way i have not so i wanted to retest them it's just a challenge because one it's costly and two you have to fedex them overnight international so the cost is not uh you know it's not exorbitant but it's not small i think is there any gofundme that we can share and help with these costs i i mean i think i can do it i don't i don't mind uh you know um i'd rather people donate to uh i was gonna talk about a non-profit we set up and and for research and we're looking for donations there i can talk a little bit about that but i back to your point i think it's uh you know it's something i'm thinking about doing once i'm off uh if i pause the ivig i may resend my serum to see what it looks like after two months and then you know get some idea my other option is if i don't if i can't get i think i really would like to trial apheresis and if i cannot uh get that here i may go to germany to trial that because i really believe in my research that is the best way to eliminate these auto antibodies from the body and i think there is some german research going on right now that they have shown that after five back-to-back sessions they have been able to remove them and not after six months see a return so very interesting so they are doing some cutting-edge research there that i've been following so it's it's that's probably that's probably would be my next move if i cannot get it done here i think some other options on the table were things like you know trying to do a reset of the immune system with drugs like rituximab or cell cept you know but they have their own risks um as well so first i think i would like to see where i'm at take a step back see where my condition is um from the ivig um see if the neuropathies start to return off of that if things do flare off that then i think i'll look for my next move got it so the only thing inside is that i didn't mention is that since august i also developed atrial fibrillation really from this persistent tachycardia i think it just gradually evolved um into a new condition so that that was a very this happened recently and that was pretty mind-blowing and devastating because i'm only 52 and you're not supposed to have afib at age 52 right it's not common it's really in your 60s and 7 or more in your towards your 70s when you develop such things so that was that was kind of a devastating event to cope with and um how are you doing there is that settled or that is still continuing it was when it first started it was pretty intense i was having numerous episodes throughout the day from morning waking up la if i in laying in bed would start just if i turn to my left side i'd get an episode i noticed some ekg changes over time like but i never thought much of them because i was having these you know tachycardic swings but i would have like pvcs i've never had premature ventricular contractions before then later i had premature atrial contractions i never i had a perfect rhythm my whole life you know never any cardiac issues whatsoever um so then you know it wasn't totally surprising that this was evolving but i was not something that you know you expect to have more added to your misery i am so sorry that you are going through this uh to me it seems like hitting your experience so far it seems like there are some areas where you're feeling better the tingling and the issues with the body and then there are tinnitus and there are other areas where you're not comfortable and still pursuing so i wish you luck i pray for you i can do anything cool means here tell us we would really like to assist um if you would like can we discuss about the links that you had shared and then a few questions from the cool beans as well is that is that okay i know you are on the east coast it is late you are you are suffering this situation as well totally up to you and yeah no problem i'm more than happy thank you thank you so much um so let me put these up uh let's start from from here so what is this so this is react react19.org yes so this is a non-profit that uh some colleagues have been working on setting up and i've been get involved with and this is uh i think from what i know one of the first of its kind to help uh vaccine injured people injured from the vaccines so it is um purely about uh helping to find uh first medical providers who are interested in studying the the injuries to looking to fund uh research uh to help guide us in terms of diagnosis and treatment and three raising some money to try to help some of the injured initiate care because i think one of the obstacles that we struggle with is really finding medical providers who one believe us and to have an interest in caring uh for us and so through this organization we try to network and find uh people who are willing uh to work to help us either research us or help uh channel people to get treatment so number one thank you very much for setting it up number two cool beans anyone you know who would like to either support this organization or become part of it to have their own situation looked at as well or work in this one i feel sad i really am genuinely telling you i feel sad that our administration's healthcare authorities haven't reached a point yet to acknowledge and recognize and then to say here are the funds available let's do something about it i have two questions which may be a little brash and my apologies one is did people say that you're making it up i don't think that anybody ever said i was making it up i have encountered people who were you know they like i am in research so i know all about attributing causality right when around a clinical trial or or uh you know a drug and study so i think people are conditioned now to approach things from initially from the point where uh no it's not possible right whereas in when i work in research i always approach it from the standpoint from this is possible so first we've got to look at ruling out why it can't be possible right you don't start from the premise of right away this isn't possible because if you work in in research you know especially drug research you know every single drug has side effects some have adverse events which are more severe and some just have your normal side effects like nausea vomiting headache you know upset stomach type stuff dizziness but then there are some adverse events i i would challenge anybody to show me any drug that does not have the possibility for a side effect or an adverse event so like i said i'm always so i'm 100 percent pro-vaccine i'll restate that here i'm but i'm also 100 percent pro science so to deny that a vaccine can't have an uh have various adverse events or side effects in people when you roll it out to the general population is just anti-science to not help people who are injured is unethical agreed so then um totally agreed and then i have another question again maybe a little hard um did anyone try to stop you from voicing this situation discussing it working for it trying to see if we can help others as well because when i talk about these things again i'm a tiny little voice who's also presenting some education then i get a lot of pushback heat complaints happened what happens to you does this happen or no you mean in among friends and family generally you are popular you are talking so i think people who know me know that i'm i i'm pretty well educated i worked across two fields not only medicine but also international development so people who know me if i say something they know it must be true because i just not a kind of person who fabricates things or dramatizes things so i think i think people are shocked when i tell my story but i haven't actually for a long time when i was first injured i didn't really tell anyone or talk about it i was actually very sick and i was scared and i was on a search for help and i wasn't i was getting nowhere which was making me more uh in despair i've had a few people in the beginning say well aren't you just being anxious right and i said well yes if you're injured or you have experienced a reaction of course you're going to be anxious that's a normal human response to a life-changing event so yes i'm anxious but the difference is the symptoms were driving my anxiousness not the reverse so i haven't really faced too much i think in the medical community in the beginning i did face a lot of skepticism i think it's because it was new and things were rolling out people didn't know they didn't have experience with these vaccines right it was all new so nobody knew the range of side effects and adverse events everybody was just learning as we were going we only knew the basics of what we were told from you know that the ones that were known in the early parts of the trials so got it thank you and i'm gonna give you a live example this is an example right now here is a guy who comments yes balls so you can see his and of course the message dr bean refusal to stand up for truth so we are talking about vaccine injury and he's still saying refusal to stand up for truth medical honesty and safeguarding public health along with trinical meg and blatants and censoring of descent will be downfall of yours and your channel this is what is also a part of our society so i was trying to figure out if you get a pushback so thank you very much for this let's go back to the messages the links that you were showing so this is one can you talk about this yeah so this is a study that uh there was a paper written early on um in i think muscle and nerve you have it listed there uh the first case of somebody who diagnosed small fiber neuropathy post cobot 19 vaccination at the university of vermont and i think they are trying to launch a study with others who might have developed a small fiber neuropathy after the vaccination so they're looking for participants and this is a link here where people can fill out their information to be contacted should this study uh take off are you okay if i share that link with the community uh yes i'm not involved in the study i just got got wind of it because i've been following all the research of course and uh i think you do need to reside in the united states and i'm not sure if you have to be close to their facility and then you know in vermont or the northeast so that the details i'm not too familiar with but i thought it would be interesting to highlight that there is some research starting now which is a good sign um for those who are affected and hopefully through our organization we can also stimulate some more studies got it cool so thank you very much and audience i have put the link there if you are interested in participating in their study this is their paper and then here there is a form that you can fill and they would figure it out again i have no association with them as sean said he doesn't have any association this is just part of the research and this may be a study that you might be interested in or may be able to help others by this so sean how would a person so a few questions i want to show you that that there are some folks who actually are in a similar situation i really want to see how would you guide them to say what can be the option so can i start with a few questions okay so here is bob wood has flu vaccine injured joined with you i've been going through this for three years uh i we haven't made any formal partnerships with other people injured by other vaccines i think what we're trying to do is he is have a focus right now as a new organization um you know and then once we get our feet off the ground and we're up and running with our with our own injury then possibly there's definitely maybe room to grow um you know to get involved with people who were injured um by other vaccines but i think right now we're trying to focus on this pool of people because we have been uh poorly neglected to date and there has been no research whatsoever um that i are you know made or at least made public that i know of other than some of the studies that are done on possible hypotheses and things but non-invol involving people and possible treatments got it thank you very much and um there was a question about the react link so i have just placed a link there as well uh again i wanted to continue to clarify i have no association with sean's organization sean you are here you can i have no influence on any of the organizations no financial no commercial interests my total interest is this i'm sitting here discussing these things to see maybe some folks can be saved they can be aware some doctors can be aware that that is and this is my channel here is a video that is my area of interest i mean just to go back to what you said about you know have i had any pushback i think you know what i i haven't but i know a lot in my in my injured community have and they have faced a lot of problems interacting with the medical community you know they've been labeled with things like functional neuro they've been labeled as anxiety or depression and i think you know from my perspective i think the what you bring is just a refreshing perspective because you investigate every angle of things and that is why i come on willingly you know i highly respect your work i think the world we live in they want everything to be black and white right so if you say something against something then you're you know in one camp if you say something for the other side you're pushed into that camp and and the the reality of the world and sciences is that it's everything nothing is black and white as we like it to be right the vaccines are good they have a purpose in ending the pandemic but they also can cause injuries that is a fact yeah agreed so thank you very much for your comment thank you for giving us your time thank you for sharing this is painful and then even with the last videos i saw that there were some there was a lot of support for you lots of prayers and there were some insensitive comments as well so i'm sure that it is painful to put yourself out there but thank you for doing this i appreciate all of that support it hasn't been easy and i have not been i'm not the kind of person who's ever spoken out before yeah so joy fisher says sean please don't give up don't give up into the despair that's another danger you face so please keep reaching out yes absolutely absolutely i'm going to see if there are some more questions there were some questions that rolled up so audience if you had questions please write them again i'll try my best to so anne scanlan says any explanation for tinnitus tinnitus i have heard neuroinflammation anything make it better is it likely to improve so i the i mean the research is still nascent we don't know right the the neural inflammation is one hypothesis um you know and i don't think that every again not everything is black and white i don't think that all the injured are the same so we all have we all have overlapping symptoms but many of us are also different in many ways so i know some people who have had developed tinnitus but they theirs was a result of hearing loss right so that's a very different ideology there are some who have developed tennessee and had no hearing loss detectable either at low or high frequencies so there could be another etiology there of neuroinflammation right so i think we're not we're not all the same but i don't think we have an answer yet on what's causing it our my only hope is that it it is some type of inflammation and will dissipate with time got it got it thank you there's a question from louis grande have you tried to contact dr stephen phillips cronic lime specialist dr afrin mkh specialist i'm glad you still have avenue to pursue and hope you find a turnaround therapy soon have you contacted dr stephen phillips i have not so i'll i'll connect you to he is a marvelous doctor writer of the book author of the book cronic has been on my channel a few times has a lot of experience and might be able to help i actually thought that dr keith uh markovic is also a very very good option because he has been managing long coverage parts and neurological issues for some time and even today when we were talking he has a lot of experience um i'm gonna ask so dr z she's actually a cool being here i think she's in psych so she's saying please let us know else how else we can support aside from donations for the organization so i think we're looking for if people know of medical professionals around the world or the country who are open to and interested in seeing patients with vaccine injury would be good to let us know people who want to help if you're in research and want to help uh help us get research going that would be another way or connect us to researchers who might be interested um so so those are some of the other avenues anything we can do for you [Music] um me personally i think just keep hope and faith and if you hear of papers published on the subject you know get get get them known to us or to you dr bean so that we can share that information um if people find treatments that work share the information there's many support websites that we have set up where we share that kind of information which have been lifelines for people so got it thank you very much john doe says please ask sean about his various reporting experience so i reported all of my own adverse reactions i don't think to date that any of my doctors have submitted it got it i don't know why maybe they just don't have the time or or they just didn't do it i i think uh it's something i need to look into and ask them about yeah it might be interesting to see there may be a reason or they may be busy but either way i think it should be reported but i have reported every single one of my events got it austin root says sean thank you so much for sharing your story and your findings i'm dealing with nearly identical symptoms six months after the c19 vaccine hang in there we'll find a solution i hope so yeah i'm just looking at the question so please um don't mind so let's take um one or two more questions try placebos um gabrielle says covet 19 recovered patients also suffer these effects or are these real unique to the vaccine only that's an interesting question do you have any insight that long coverage or post covete have similar effects as well i i do notice that it that the you know in the research a lot of the symptoms mimic uh long-haul covet there's different theories on why that is one is reactions to spike protein um you know we not enough research to really make draw any conclusions but it's it is an oddity that we do share some of the same symptomatology and i think that that actually kind of guide us as well that in the vaccine it's only the spike and in the covert there is a whole virus but it seems like something unique to spike and from there we can start kind of thinking about antibodies and they can thinking about is to modulation i mean there's been many hypotheses right there's been like where uh were people directly injected into the blood vessel and did that you know create something did they hit a nerve when you were injected so i i don't know you know it's they're all hypotheses right now we don't really know we don't have the pathology yet no and i suspect that pathology is going to be multi multiple systems and multiple failures and multiple pathologies not one exactly because we're in some way similar but we're all also very different like some people had clear-cut cases of bell's palsy some people had you know guillain-barre syndrome some people had transverse myelitis some people have this other auto antibody sequelae so endocrine issues yes multiple there's just all kinds of things like with anything within any drug anything can happen to people that's just unfortunate when it happens to you right absolutely absolutely happy valley firm says did he have muscle loss too i didn't have any muscle or motor ner like large fiber nerve issues thing luckily got it mostly small nerve neuropathy one more question got it sorrento says are there reliable reliably statistics on the rate of vaccine injury occurrence so i think she's saying i mean i can only speculate i'm not you know in charge of um compiling but i do i would imagine with any system it's imperfect right so you capture data in certain time frames and is the data is only as good as who's entering the data and what data is being put in and over what time period right so if you developed like i had developed atrial fibrillation but it was like many months down the road right would somebody attribute that to the vaccine or could you just say oh because your vaccine was in january now you have a fib are they two different things yeah but if you do the deeper analysis i've had cardiac instability from the beginning and it's just progressed so it's data is only as good as putting in what yep queen city dom says could ivig help with the ace to antibody that sean has shown positive for the cell trend labs [Music] and i don't know it um we would need an immunologist expert or somebody who's doing deep research in anti-ace to antibody yeah augie says have you heard of the investigational drug zofin recovered 11 long haulers i have not got it so this is where we are the questions are there for example living wellness says i have blue fingers had a blue underarm and apple cider swelling in my armpit in addition to disabling pain have you heard anyone like that there are just so many side effect types right so sean thank you very much for sharing your time with us sharing your experience with us hopefully some healthcare professionals they can they might hear this they might see where further to dig where further to research there are lots of papers that can help guide as well there are lots of videos talks i've done some talks others have done talks your experience there are others whose experiences are out there as well and then at the end i want to show once again your message and here is your organization this is react19.org and so sean uh anything on the closing i would just want to thank you again for all the work that you do for highlighting all the science um being true to science and um also giving me a platform to share my views my goal is by doing this to get the word out to find people to help us we are in desperate desperate need of medical practitioners that are interested in helping us who are following the science and looking for answers praying for your health for your recovery and praying that this actually moves forward and hoping that with your experience and then your your efforts may more people be saved and be protected thank you very much have a good night and cool beans thank you very much for listening in and tuning in as well see you on monday bye bye okay thank you

Channel: Drbeen Medical Lectures

Views: 205,880

Keywords:

Id: rX8I5-yG05g

Length: 59min 16sec (3556 seconds)

Published: Fri Jan 07 2022

Reddit Comments

[u/1bir]

SS:

He was a healthy person with no significant medical issues prior to vaccination and enjoyed walks in the park with his partner and two dogs. Immediately after receiving Dose 1 on December 29, 2020, he developed paresthesias along the injected right arm into his upper back and axilla. This progressed with tingling into the right face, eye irritation and flushed ear. He was seen and evaluated by a neurologist who recommended he receive the second dose if symptoms subsided. The symptoms resolved after about 10 days. On January 19, 2021, he proceeded with Dose 2 in the left deltoid. The first 3 days he experienced normal injection site pain that radiated to his neck and back. By Day 4 he woke up with ringing in the right ear (tinnitus). He also developed prickling sensations in his throat and the right sided paresthesia returned with more intensity. He was instructed by a neurologist to “wait it out”. By January 30 he developed tachycardia, fluctuating blood pressures, severe right sided headache, and increased tinnitus. As a medical professional he knew something was “wrong” and went on a desperate search for care. He was confronted by a medical system ill-informed, ill-equipped, and often unwilling to recognize such reactions. Leaving him with misdiagnoses and improper treatment.

His symptoms continued to progress devolving into acute autonomic dysfunction (positional tachycardia) and generalized, whole body neuropathies that even involve his mouth and throat His life is one of constant stinging, stabbing, burning pains along with debilitating ear ringing. He has had a positive tilt table as well as a skin biopsy showing small fiber neuropathy. These reactions have robbed him of many of life’s pleasures including ability to sleep, watch TV or listen to music. It has impacted his medical career, and the tinnitus has stolen his silence.

https://www.realnotrare.com/post/shaun-barcavage-fnp-bc