Humanizing Hoarding | Jennifer Hanzlick | TEDxBoulder

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Translator: Lis Geraci Reviewer: Aari Lemmik What do you do? When I first started my own business, I thought I had to go to networking events and all night long, I'd get asked that question: "What do you do?" So I would say, "I have a hoarding clean-out business." And I would have to enunciate the "d," or it was mistaken, (Laughter) for "whoring!" So now, I tell people, "I work with those who are suffering from hoarding disorder, like Jim." Now, when I meet Jim, I'm standing on his front porch. And this is the sign that I'm seeing. [Danger] [It is a crime to occupy this building or remove this sign.] The city has given him his last attempt to stay in his home, and I'm there to see if I can help. And I sit with Jim and he starts to tell me, "I don't know how I let it get this bad. I've tried so many times to clean it up, but I can't make any progress. I was going to see a therapist, but I stopped going. And I could never even tell her about the inside of my house. And actually, everything has a purpose," he tells me. "It's piled high against my walls, it's helping to insulate my house. "My furnace is broken and I can't let the repair man in to fix it." I finally say, "I just need to go inside. I need to get an estimate to see what the cost would be to clean it up." He says, "Go ahead in without me, I'm sorry for what you're about to see." Now, I go in, and I'm looking around. It's everything that you and I have, just a lot more of it. But then, I make my way to the bathroom and I see several Ocean Spray cranberry juice bottles. But to me, it looks like they're filled with apple juice. And then I see bags, and they're tied up and they're layered in buckets. And I get it; his plumbing is broken, too. It's urine and its feces. But some people see this, they think it's dirty and disgusting, but it's resourceful. I go back out, I sit with Jim, and I tell him - he's crying now - I say, "It's okay, we got this, we can clean this up." I said, "It's not that bad." I tell him, "I do this every day, I've seen much worse. You're not alone, and don't feel bad." We can choose to judge Jim or we can choose compassion. There are 15 million people in the United States that have the same disorder as Jim. It's two to five per cent of the population, in the Denver-Boulder area, it's 150,000 people and in this room, there could be 110. There are more people with hoarding disorder than with Alzheimer's disease. But you wouldn't know it. They're hiding, silently, behind closed doors. With the blinds pulled down, they're afraid to come out, and they're afraid to let you in. Hoarding disorder is a serious and complex mental illness, it's very difficult to treat, and there are many different factors that go into it. Genetics, learned family behavior, and studies show that there's abnormal activity in the brain, the pre-frontal cortex, the place that's responsible for organizing, planning, and decision-making. 75% of those with hoarding also have a co-existing mental illness such as depression or anxiety. They don't want to live like they do. But when you hear "hoarding," what do you think? Weird? Lazy? Dirty or sad? Or, you wonder if you have a problem. You can't park your car in your garage, you have stuff you haven't used in years but you might use it someday, so you don't throw it out. Or your wife has so many shoes in her closet, you think she's a hoarder. Well, just know that the definition of hoarding has four parts. The first one; it's an excessive accumulation of stuff. The second; extreme difficulty discarding your possessions and sometimes trash. Third; living spaces cannot be used for their intended purpose. So you can't use your stove, your kitchen table, or sit on your couch. And lastly, it causes distress and impairment. So unless you meet all four parts to that criteria, you're not one of the 110 persons in this room. But it impacts you anyway. Hoarding is a community problem, and whether you know it or not, it impacts you. As a community, as a taxpayer you are part of the solution. There are cities all over the United States that are treating the symptoms of hoarding disorder. And they're publicly shaming them with signs posted on doors, with threats of evictions and fines and even jail. Take one of my clients, Mary. All of these government agencies were involved in Mary's case over several years. It was the second time that a cleanup company was called in to work with Mary to help her stay in her home. And this is common. Because there's a 90 per cent recidivism rate after a clean-out without mental health treatment. Just because we come in and clean it out doesn't mean that the behavior goes away. So when I meet Mary, she's wearing purple sweatpants and a grey t-shirt. She comes to the door, and she's a little bit feisty. She doesn't want me in there, but she knows that it has to happen. We work together for two hours and I know this is going to take time. I tell her, "We're done for the day. I'm going to come back the following Tuesday, and we'll start where we left off." I come back the following Tuesday. Mary, she has the same purple sweatpants and the same grey T-shirt. But this time, after about 30 minutes, she starts to crack a smile. And we're making progress. She's laughing, she trusts me. I tell her, "Mary, I've cleaned out your shower, and put your dirty clothes in one spot. Your homework is to take a shower and to do the laundry." So I come back the next Tuesday and you already know. Mary has the same purple sweatpants and the same shirt. And now I'm worried. So I sit with her. I ask her, "Mary, what's going on? Why haven't you taken a shower?" She says, "I can't. It burns, it hurts, I think I have an infection. And I haven't been able to go to the doctor." Then I ask her about her laundry. She says, "I'm afraid. I was raped by two guys in the laundry room, and I've been afraid to go down there." We can choose to judge Mary, or we can choose compassion. And there's a whole community of people like Mary and like Jim, who are being judged and misunderstood, and I know why I'm drawn to this work and to this community. I know what it's like to be embarrassed, ashamed, and afraid. Just like they are. One night, when I was 19, I was a statistic. Teenage pregnancy, unwed mother. To make matters even more dramatic, I had twins. To make matters even more dramatic, the father of the twins is black, we lived in rural Texas, and he was abusive. One night, I felt like a scene out of a movie. I found myself trying to escape. From Texas to Denver on a Greyhound bus. I had two babies, six months old. One diaper bag, and 500 miles to go for safety. I'm shaking and I'm afraid, and the pain of trying to hold back my tears in public felt like someone trying to choke me. The babies don't know what's going on they can't understand it, but they completely sense and feel my fear, and they won't stop crying. And everyone on the bus is frustrated. They can't sleep, I'm ruining their trip. And it's only making it worse. And then, out of nowhere, comes a man, he's dressed in army fatigues, and he just says, "Can I help?" He sits down next to me, he takes one of the babies and she immediately stops crying and she falls asleep. And then, he takes the other baby and she immediately stops crying and goes to sleep. But I don't remember his name. The words, this is what I remember him saying. He says, "Your babies are beautiful. I'm headed home to see my wife, and she is black. And if we have babies, they may they be as beautiful as yours." And I remember that moment 25 years ago. That moment, it changed the course of my life. He could have judged me, like those on the bus. He chose compassion. It's a choice. We can either choose to judge hoarding disorder, or we can choose compassion. Because judgement and shame perpetuates this illness. So just remember next time you call someone a hoarder, it's not who they are. Look beyond the clutter. They are intelligent, and creative, and funny, and generous. They are college professors, engineers, artists, and entrepreneurs, just like you and I. Thank you. (Applause)
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Channel: TEDx Talks
Views: 254,150
Rating: undefined out of 5
Keywords: TEDxTalks, English, United States, Health, Behavior
Id: ZV-5I2RMTGM
Channel Id: undefined
Length: 11min 3sec (663 seconds)
Published: Mon Oct 10 2016
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