Participatory Design and the "Making" of Health | Joyce Lee | TEDxDetroit

I'm delighted to be here I want to thank the organizers for this invitation um I am a pediatrician a diabetes specialist and I'm a clinician at M Children's Hospital I am also a researcher and associate professor at the University of Michigan with appointments in the school of medicine and public health but I actually have an alternative identity online as doctor as designer because I'm very passionate about the notion that human Center design can Will and should transform the healthcare Enterprise that we have right now so I tweet I tweet quite a bit there's my Twitter handle um and I blog and I talk about a patient centered future for healthcare but I actually have no formal training and Design design was actually something that I encountered accidentally two years ago when my family and I went on sabatical to the Bay Area we were going to be gone for a year and we brought our kids with us we have two amazing kids B and S but they both have life-threatening food allergies so be has actually been in the emergency room multiple times because of his life-threatening reactions and because of that we have to teach his caregivers how and when to give this medication called the EpiPen which is a a medication that you give um in the case of an emergency but unfortunately this is what the Health Care System gave us and I would call this a design fail because this is two pieces of paper that are really hard to use to explain to a caregiver how to save your child's life so there we were in Silicon Valley we were inspired to make a YouTube video and when I I say we I mean the collective we there's my child playing violin um I am a lazy tiger mother so I was not going to make this video alone I was going to make this a team effort he was six at the time he had just learned to read and write and I thought this would be a great opportunity for him to learn about his allergies and so we did this video together I scripted it but he narrated it and he Illustrated it himself and here's our prototype I am to De is when do you give me in an hisy when I have a few hives oring M how do you give me an hisory me when you put the purple strip on my tongue when you give me an epip pin Junior blue pale we pose confused trouble breathing swollen lips swollen tongue hold for many hies or if I have two systems involved like T lips in tongue or he and Ving or there you how do you do the EV pin Junior step one take off blue Camp step two no do not touch the orange tip you will poke yourself instead of me step three push orange tip into th musle hold for 10 seconds then call 911 thanks for taking good care of me so I posted the video on my blog log shared it with his teacher the next day she shared it with the entire school and it even went a little bit viral it got picked up by some pediatric bloggers like Seattle madok Dr Green Health technology experts like Susanna Fox and so I would actually call this prototype of design success 1479 views that's pretty good but it's really not about the metrics right it was the design that we needed to solve the problem that we had for health and we were able to figure it out together so be actually has his own blog now it's called IH have food allergies. tumblr.com you can go check it out um and we ended up doing a whole series of videos we ended up making a Trilogy because we had a snafu with ingredients in food handling and we thought we had to educate the providers about that and then we got back to Michigan last fall and he had a flare of his asthma so we talked about his allergy medications as well and then I even did a little bit of design myself uh I needed a low Fidelity version so that I could give a paper version to his caregivers in addition to having the electronic versions that had the emergency information as well as the instructions in written form using his illustrations and information about allergens so there were three design insights I had about the production of health and the future of healthcare from this experience first was that we were experts as patient and caregiver we knew exactly what problem we needed to solve second we were makers we had access to very simple tools like an iPhone and Screen cam casting software and we could upload to social media channels like YouTube and blogs in order to distribute our prototype and three we were collaborators I don't have the charm that would have made this video a successful prototype he had the scales the artistic talent I added a little medical information and I pulled together um the Primitive production right um so to me this is the future of healthcare patient is expert patient is maker and patient is collaborator but to you know get to that future of health care we have to overcome the the culture of healthcare which says that doctors are experts and not patients and says that only certain certified health professionals should be creating health and that has a system that really supports a one-way system for creation of Health Doctor to patient so when I got back to Michigan I started collaborating with some incredible colleagues from the stamp School of Art and Design Matt Kenyan and John Marshall and we began prototyping the application of design thinking to healthcare validating and valuing patients as experts with a lot of wisdom about their own health including them as uh or letting them drive the conversation about what problems need to be identified and prioritized and involving them as co-designers in the creation of Health we pair together designers with patients to create educational materials like digital comic books and digital games and we're trying to create a culture of Health within or a culture of Design Within Healthcare that treats design not as a distraction from Health but actually a critical tool for the creation of health and along the way we met some makers I don't know if you're famili with the maker movement a lot of you are but it's a do-it-yourself technology movement that supports learning by doing in a peer-to-peer fashion and I started to make the connections between the maker movement and paratory design DIY patient is expert learning by doing patient is maker peer-to-peer learning patient is collaborator so we held the first we make healthfest this August at the University of Michigan where we brought together patients and health providers designers Tinkers and makers to explore the incredible opportunities and the incredible Creations that might come about by integrating making with health and we've created a collaborative Innovation Network which we call Health design by us which we hope you will all join to help further this and scale this work so what I dream of is Healthcare that doesn't look like this doctor to Patient passive and solitary but Healthcare that looks like this Patient to Patient active and collaborative so be is already thinking about the next prototypes that he's going to be building he actually built a couple of prototypes for the we make healthfest both cardboard and digital and um he actually gave the opening remarks as well and he has some words of wisdom for us that say you know it takes crew work teamwork and creativity it's not just you it's US Health designed by us and I just want to thank my colleagues and collaborators um from University of Michigan but across the globe as well for supporting uh this endeavor to integrate uh patient center prary design into our healthcare system thank you

Channel: TEDx Talks

Views: 15,291

Keywords: Medicine, ted talks, tedx talks, English, ted, United States, ted talk, tedx talk, TEDxTalks, Health, tedx, Design, ted x

Id: HyVaEASftF8

Length: 9min 54sec (594 seconds)

Published: Tue Mar 17 2015