Life as a Quadriplegic: Sophia Malthus

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(UPBEAT HIP-HOP MUSIC) (SOMBRE PIANO MUSIC) I started riding horses when I was 7 years old. I loved being outdoors with my friends. All I wanted to do was get on a horse and go fast. It was a way that I could feel free. I got the idea that I should become a jockey. I started working towards my apprenticeship. About 15 months ago, I had an accident at work. I was out on the track with the horse, and then he spooked at something. He bolted, and I couldn't hold him back, and that's when I fell off and broke my neck. The phone rang, and they did not try and sugarcoat it. They told us that she was a complete tetraplegic, which means that there's no messages coming down from the point of injury. (GENTLE PIANO MUSIC) Ready? Yep. Today we are going to the racing stables... where I started and ended my career. Hi! Thank you for coming. I haven't actually been there since my accident. I've got a vague idea of where I had the fall. Yeah,... I think I fell off here. Right. (SNIFFLES) So I broke this part of the fence. That's where it broke. Yeah, it broke. That bit there. Oh, wow. So the horse broke that, or I broke that? You broke that. Looks bad. You right? Must have been hard for you, I guess, as well? (SNIFFLES) Kind of. (SOMBRE PIANO MUSIC) This is the horse I fell off. (SOMBRE PIANO MUSIC CONTINUES) I don't have anything against the horse. I just won't put my money on him. (CHUCKLES) I think I can do it. Life is definitely very different now. How are ya? Good. OK. I broke my neck at my C4-5 vertebrae. So, as a result, I can't feel or have any function from about the collarbone downwards. Has the,... do you know if the pressure sore's changed at all? And I have partial paralysis in my arms. And then both of my hands, I have no hand function. I have 24-hour carers. In the morning, that's having a shower, getting dressed. So every move that I make, I've got someone there supporting me. It's very good; I'm very grateful for it. But it can get really hard to go from living such an independent life, being 19 years old, to being 20 years old, constantly being looked over, constantly having to ask for things, can't go anywhere by myself. (EXHALES) Just got some... high tone in my legs. Um, like, the muscle spasms, so they can be... quite hard. At the moment, it's not moving. Um,... yeah, so the tone makes the muscle really hard to move, and then also because I've got weak arms and no stability from... having no core muscles. Every day, I'm working towards becoming more independent, because I just cannot see myself living a life where I have people doing everything that I need done. I think that nobody is put into this position and thinks, 'Gosh, I just want everything to be done for me.' Every day, there are small wins. Toes. (CHUCKLES) What's the point? I might put a sock on faster than I did the other day, or I might be able to wash more of my body in the shower than I did the other day. And so it's really important to me that I do try, because, ultimately, what I want is as much independence as possible. All done. Oh, it's amazing. I love watching Sophia get to the next level, eh? Sometimes she tries to ask me to do the impossible, and I say 'No, I can't do that,' and she thinks that I'm just being lazy, so— (LAUGHS) 'No, you can do it!' And I'm like, 'No, I don't have the muscles.' Gilly tells me to push her, so... I push her. That's her physio. Physiotherapist. What is it? Yeah. Yeah. Yeah, physio. So I listen to her. I mean, there's things that we could definitely work on, but, you know, that's just me. Sorry, when did you last have a spinal cord injury (?) (LAUGHS) Hey. You'll get to know her... her funny sense of humour. I mean, ever since the injury, we've made jokes about it, because, you know, the injury's either gonna make you or break you. There's no point letting it break you, because I'm not gonna sit around at home all day, so... just keep going. Here. Up, up! Good girl. Come on. Good morning. She does this every morning and I ask her if she's had a good sleep, and then she gets me very dirty. Good girl. (GENTLE ACOUSTIC GUITAR MUSIC) Sophie amazes everybody with how strong that she is. The sense of humour that she's used to carry her through, um,... right from day one. I was in the spinal unit for three months, and then I was in Laura Fergusson for eight months. I was actually in rehab for my one-year anniversary. James, he's been in my life for a long time, and I couldn't ask for a better stepdad. JAMES: OK, exhibit A. It's not a phony. It's an apricot. A real one. From her beautiful mother. Watch this. The doctors never expected her to do anything. Just work with what she's got and strengthen the muscles that she does have and learn to use them in different ways. That's good. You're doing amazing, Soph! Far out. Martha! Martha! When I left the spinal unit, I had to go back to the support of my parents. There was so many logistical things at the start. We had a five-level townhouse that we had to sell, because no way it was wheelchair accessible. We knew she wanted to move to the country, because she's always wanted to move to the country. Basically, we're at the point where this terrible thing happened to our daughter, and we just want to give her a beautiful life. So this is my little house that I'm living in. My cabin next to my parents' house. So that's just the lounge. Go on. This is my bedroom and my kitchen. I have a cabin behind this place for my carers to hang out in, which is good. It means I can try to become as independent as possible, and just get some alone time, which is nice after, you know, a week's full of physio and therapy. Living here has been really good, because I can do whatever I want, have my friends around whenever I want, have more control over my life. Gotta angle everything right. Otherwise I don't get very far. Coming. Can I please have... broad beans and tomatoes? Sure. When you're in the spinal unit, they give you these — they're called palmar bands, and it's like a handle for everything, so it makes everything big. Kind of like this. It's like a rubber foam, and it's got a hole in it, so you, like, put your knives and forks in there, or whatever. And they got really angry — they didn't get angry — they were disappointed in me, for not using... them. I was letting other people feed me. Because I didn't want to eat anyway, so it was like, I don't want to eat, so I'm not going to try eat... you know, go to the extra effort of feeding myself. And, um,... And then one day, Mum made me some food. And she just put it in front of me, and then she sat down and, like, started checking Facebook. And I was real hungry, and so I just picked up the fork and I started eating — like this. And then I was like, 'Oh... Whoa.' I was like, 'Mum, look.' And she was like, 'Oh, cool.' You know, she was on her phone. And I was like, 'No, Mum, look.' And then she was like, 'Whoa!' But Mum's got a big veggie garden, so... Um,... she's learning. (UPBEAT ACOUSTIC GUITAR MUSIC) I never, ever have had any desire to live in the country. But this is close to town, and it's not a farm. So I've become a full-time gardener, which I did not have green thumbs. It's a complete learning curve, but I'm really enjoying it. And it gives me the flexibility if Sophie needs something or I just want to pop in and visit her. I harvest for her daily. Saves her a fortune on vegetables. (LAUGHS) My days are full of appointments. Especially for the first one or two years of the injury. You've got reassessments, and you've got really intense physio. And I am pushing for as much therapeutic input as possible. It's been up to us to find alternative therapies. We have a really awesome neurophysio. And she's got her whole life ahead of her. Why wouldn't you try everything? I'm a neurological physio. It is a very specialised area, so spinal cord, Parkinson's, MS, head injuries, and what I'm essentially doing is trying to reconnect the brain with the body. What I know is that, if we try to aim for walking, we're gonna get something else. We're gonna get some better core, we're gonna get some better shoulders, we're gonna improve functions somewhere, and that makes someone happier. Good. And lift, Soph. Beautiful. Good, and now take the weight over the foot — good. And then, Sophie, you go. Pick, pick, pick, pick, pick. Now wait there, Flick. Neuroplasticity is happening all the time, and if you learn very quickly for the first three months after your injury that you can't move from down below, then you're going to adapt, and your brain is going to adapt that it doesn't believe it's there. And stop there. Are you gonna help? I am gonna help you when you need to be helped. Progression with a spinal-cord injury — it's slow. But Sophia's potential to transfer by herself was there. Her problem is her triceps, because that's what we use to push ourselves. Good try. Take your top part up. Up, up, up, up, up. Try and go up. Try and go up. Good. I've got that. So, that is coming on fantastically. Cos it wasn't that long ago that you needed help to actually do the slide part, whereas now, you can do a slide part by yourself! So, when you first have your injury, they assess you, and they give you a grading. The ASIA scale is ASIA A to ASIA D. People that are walking are ASIA D, and so ASIA A means you're complete, which generally means they have no hope in you walking again. So, I was ASIA A. Can you feel what I'm doing? Yep. Yep. Can you describe what you feel? Pins and needles. Where at? On the ball of my feet. Can you feel that now? Yep. Yep. OK. Find it, push it away. Push it away, push it away, push it away, push it away, push it away. Good. Now bend it. Bend it. Bend it. Bend it. Personality and motivation is absolutely massive in neuro rehab, and it's those people who are always looking for the improvement; they're the ones who do well, because they've got the drive. Knees are gonna bend. (EXHALES) Good girl. Can you feel that? Yep. 'Having a support team is massive, and this is where Sophia's in a fabulous position 'that she has got an amazing mum, amazing stepdad, 'who are absolutely 100% behind her, supporting her, will do anything for her.' Good. Shoulders down. Nice. Beautiful. Ta. Push through your arms. OK, let your knees bend. Now, push through your heels. Heels. OK, down you go. (GRUNTS) Sweet. It's tiring. (INSPIRING ACOUSTIC GUITAR MUSIC) (MOTOR WHIRRS) James has been amazing. He is always looking at equipment and therapies that I can be doing. He's very involved in my rehab. (MACHINERY WHIRRS) Good. Have a little rest for a mo. Phew! Done. Done. (LAUGHS) I could do with this some days. (LAUGHS) Yeah, I reckon. Morning! Morning. How are ya? Yeah, good. Good? How did, um... How did she go? Yeah, yeah, she was fine. She was all good. One of my carers noticed a red mark on my bum. Because I sit all day, I have to be wary of pressure areas. Martha. Martha, up. 'Being so skinny means there's not much fat on my bones. 'The bony protrusions can irritate the skin. 'The skin breaks down, which means you can get infections, and they can be pretty dangerous.' She's warning me — not like I can do anything. 'The only cure is bed rest.' (BED WHIRRS) (EXHALES) Um, I just feel a bit nauseous cos I haven't sat up for four days. So, I've just got quite low blood pressure. (DRINK BOTTLE SQUEAKS) You got to remember that, because I've been lying down for so long, my balance and everything has kind of... not been practised,... so I'm a bit... Thanks. I'm a bit, um,... all over the place, really. It's really hard for me to do everyday tasks, so working on my balance and what I can do with my hands is obviously therapeutic. I know that a lot of people, when they have disabilities, whether it's from birth or an accident or something, a lot of people will stop taking pride in their appearance. My mum wouldn't let me do that. So, like, three weeks into my injury, Mum and I were just sitting in the spinal unit, and she was like 'Let's do some therapy', and I was like, 'OK. What do you wanna do?' And she goes, 'Let's put mascara on.' And I was like, 'Oh, of course that's what you would want to teach me.' Like, that is such a, you know,... My mum takes a lot of pride in her appearance and stuff like that, so, yeah, that was her input to my recovery. Bless her. (GENTLE GUITAR MUSIC) Just teeth. FLICK: She's determined to be more independent. Every little bit that you can do is doing something. It's just digging a little bit more of that pathway. (ANNOUNCER READS RACE DETAILS OVER PA) Even though I'll never be a jockey, I still love going to the races. It's such a good energy, and it's just something that I love. Oi, Gripper! Gripper! Hey! Hey, how are ya? How you going? Good, you? Good. I haven't seen you in a while. Yeah. How you been? What's been keeping you busy? Oh, well, you know, rehab, and... Looking good. Yeah, you too! Thanks! Good stuff. Look at the biceps, mate, eh? Looking great. Thank you. Oh, good. Should we go? Yep. Oh well, we'll get you around to the start. ANNOUNCER: Number nine, Silver Cloud at 3.20, 1.30, ahead of one, Breezon at 4.60, 1.70, and.... You got it. Beautiful. Look at that. Thank you very much. All right in there? You'll be able to do it all yourself soon. (GRUNTS) And we're off, racing! I was a pretty active person; I was a jockey, and pretty lucky to ride around the world, and then, having a car accident, it changed my life. I was paralysed from the neck down for a couple of months, and then I slowly got a little bit of feeling back. I was asked by one of Sophie's friends if I'd come and help Soph along. She told me about her accident, and I've never met a young lady with such an attitude. FLICK: Good girl! No problem. She's really grown on to be like one of my daughters, really. I've got Sam Spratt, Sam Collett, all your girls. They'll all say, 'Hi, Soph!' ANNOUNCER: Loading away. 100% Appliances 1200, Breezon about to go into line, Full Of Talent— Gripper's job is making sure they start exactly to the second. It's all live. She's one of New Zealand's best jockeys. I had some desire to get back on a horse. I contacted Riding For The Disabled. But there's no attraction for me to be sitting on a horse, surrounded by equipment. (GATE ALARM BLARES) ANNOUNCER: That's it, now. Gates open, they're off. As I grew up, I had known that to be a thing of freedom and an escape, rather than held in. It's All Fake News is next, and further back in the field, too, Blue Breeze. Three lengths away, Corporate Raider is last of all, down by the 850m mark. I'd love to stay in the racing industry. I think it's really energetic. There's always something to do. Corporate Raider, Silver Cloud. Corporate Raider will beat Silver Cloud. Third over, It's All Fake News and then Breezon. I'll give you a hug. Hello. How are you? Good. I love your necklace. Oh, thank you. It's my Mum's. (LAUGHS) Is it? Yeah, I don't own necklaces. How are you? Good. How are you? How's it going? Good. Nice colours! Who are you riding? Uh,... who am I riding? Uh, I was gonna say Blue Shadow. Uh, Breezon? No, it was Lucky— Lucky... Lucky Sweep? Lucky Sweep. Lucky Sweep. Nah, I'm not riding Breezon. It's a big industry. It's not just being a trainer or being a jockey. So, there'll be plenty of jobs there for you. Thanks for that! (LAUGHS) Yeah! We can put you on the TV. You're better-looking than most of them. Some of them are ugly, that we have to deal with. (GRIPPER CLEARS THROAT) (LAUGHS) Yeah, exactly. Like Gripper. (LAUGHS) (WISTFUL ACOUSTIC GUITAR MUSIC) Of course everyone wants to be independent in getting themselves from one place to another. Especially when you live out here; it takes ages to get anywhere. For me to be able to drive, that would mean that I could go see my friends, go to the supermarket, do anything, really, by myself. Soph is my favourite niece. Aww. She's my only niece. (ALL LAUGH) So there's no risk in saying it. She's amazing, and she's always, yeah, had that drive to, 'I'm gonna get through this.' And that's why I think... we haven't, as a family, got too stuck in the darkness of the injury and stuff, because I think we just all know, like, intrinsically, that Soph's going to do amazing things. And it's really just been, for you, a case of having to think, 'There are actually endless possibilities still. 'They're just not the possibilities I had considered before now.' Very few people have this injury and come out,... you know, worse off than when they went in. You improve. Your whole personality changes. I've become a lot funnier. (ALL LAUGH) We love the self-confidence! (ALL LAUGH) Actually, maybe you should do stand-up comedy. Yeah, but I can't stand up. 'Sit-down' comedy. (LAUGHS) Yeah, 'sit-down' comedy. I worry that I won't get a husband. Serious worry. This has come up more than once. (LAUGHS) This is, like, the biggest worry. That's the first thing I thought in the hospital was, like, 'Oh my gosh. Am I still lovable?' She has had several proposals. That's a completely different story. But you have! From overseas and here. They're random people on Instagram! There are also people you know that have proposed to you. Cos she's popular. You're so beautiful. My point is, you are still extremely desirable. Not really. You just have to find someone that you like. Let's not have this conversation. (ALL LAUGH) She will have a bigger life as a result of this accident than she may have had before. In a way, she has fewer opportunities, but they are bigger. And she's such a little bright spark. People are just drawn to her. The more people see of me living a fulfilling life, and, you know, still having goals and achieving things, the less people will think that I'm trapped. Life doesn't stop with the wheelchair. Your legs stop, but your life doesn't. (CHUCKLES) Attitude was made with funding from New Zealand On Air.
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Channel: Attitude
Views: 2,441,632
Rating: undefined out of 5
Keywords: AttitudeLive, Disability, spinal cord injury, tetraplegic, quadriplegic, paraplegic, wheelchair, horse riding, spinal injury, disability awareness, disability awareness video, spinal injury recovery, sophia malthus attitude, sophia malthus youtube, sophia malthus nz, sophia malthus mother, neck fracture, horse riding injury, physical disability documentary, disability mobility, spinal cord injury story, quadriplegic hands, paraplegic women in wheelchairs, disability short film
Id: voPlqTOdVU8
Channel Id: undefined
Length: 29min 0sec (1740 seconds)
Published: Mon May 28 2018
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