Hemophilia Treatment Center: The Bradys' Story | Cincinnati Children's

[Music] when they were thinking of starting a family Dana Brady and her husband Ryan knew there was a 50/50 chance she could pass on a rare hereditary bleeding disorder to her sons Dana's dad had haemophilia B which meant his blood could not properly clot to control bleeding that did not stop him from a life of adventure including becoming a jockey racing horses at Turfway Park he did it all and he has lived a wonderful life though Dana didn't have symptoms herself she was a carrier and it made decisions about having kids tough she and Ryan decided to have biological children anyway two of their three children do have hemophilia and they are among four hundred kids with blood disorders that Cincinnati Children's sees each year it doesn't really affect our daily lives however it affects an ideally life because I live with the mom guilt of the whole situation of passing on hemophilia and I live with extreme worry of what's going to happen to them they've been frequent flyers at Cincinnati Children's at the haemophilia treatment center where they've found not just diagnosis and treatment but also support we feel that there's more to treatment of hemophilia than just giving medicines we feel education is a big part of what we do at Cincinnati Children's we also like to support our families so we have wonderful social workers and psychologists who help our families and our patients cope with their hemophilia and then we like to make sure that we have various support groups for our families and patients and let them know that they can live perfectly normal lives even as active boys I think our goal has always been for a cure for hemophilia but I think the most important right now for our team is to make sure that patients quality of life is what it needs to be for the Bradys that meant embracing activity my bike I like your writing the dunk and I let my little judo I'd like to ride my Segway they've learned to monitor bumps and bruises and educate school teachers and nurses about the risks of uncontrolled bleeding our hopes and dreams for our kids is that they live a normal life we're trying really hard to not put them in a bubble they play baseball and they play soccer and basketball and we really want them to just be normal boys and whatever that looks like you

Channel: Cincinnati Children's

Views: 31,612

Keywords: Cincinnati Children's, Cincinnati, hemophilia, Hemophilia Treatment Center, rare, hereditary, bleeding disorder, blood disorder, blood clot, hemophilia a, hemophilia b, uncontrolled bleeding, carrier, biological, worry, mom guilt, factor, dr. tarango, pediatric, support, wuality of life, cincinnati children's hospital medical center, hemophilia bleeding, hemophilia treatment, bleeding disorders, bleeding disorders in pediatrics, quality of life, hemophilia treatment centers

Id: ZvohQ9Jp14k

Length: 2min 25sec (145 seconds)

Published: Tue Jul 09 2019