ALS Day by Day with the Reich Family

well I guess I just most excited that he was fine and everything was perfect and then after that he was just really pretty easy especially for a first baby he was always stable he didn't get sick very often I can't really remember him being sick at all so it's kind of ironic you know he was pretty healthy I [Music] probably wanted to be a dinner in her Mineta Denisof SF for my freshman year : I got in the hand the Tennessee instruments and I was having a thumbhole when they started you know I'm holding five minutes two minutes whoo amazing know he's seen wearing blue mentor amazing man I never met him I am sort of the research type of person so we'd been looking things up and I thought well it sounded sort of like MS to me and so I found myself at first hoping it wasn't ms hoping it wasn't ms and then when we thought there were other choices that I was hoping it was MS and hoping it was MS but turned out not to be a mess unfortunately she went something I know my mom and dad know the exact name I can't remember anymore the whole family went in together and then when they him they put this whole room all together and one of the two were clean no I was just gonna came in and looked at me for about five minutes and then sat down and he started home we're all in this mall and he said you know you went from the best I can tell and I'm a I was anyway more say in my life you okay so just so that it's so okay so we're watching the wolf together just to get a sense of take it one more normal breath big breath a basic is bow okay go you're going keep going push push push push push keep going keep going keep going that's it you tired don't get discouraged all right you gonna breathe out there see that dip like she showed up her airway starting to collapse a forceful exhalation can't do anything about that right but it does affect the numbers all right [Music] I'm and I have ever something rounder in Holland I'm a generation that lost in the moment and so first it wasn't everything Neil but now he more samwich morning and they're so home this I mean I thought he would be a cosmetic dentist or a physician but then when his hand started to go I thought he would probably be on on Wall Street but that was before I knew he had ALS I knew he'd be successful in whatever he did I course you just want him to have a relationship having children not really for me but for him you know grandchildren would be nice but then you just think oh that doesn't matter anymore helping me moving in I'm just turned another droid myself mom you know my mom Hannah my male half cowering in the horsey emotions on the middle of town on my own and I can't imagine not having my parents you walk up Brian I'm feeling good man nice laughing and I'm living in the moment not knowing thank you my now embodiment is my moving on and hoping for any kind of medicine that will slow progression that's what everyone always know be more and I do think the other research will come through and I am hoping it comes through soon enough I know it's going to happen it's just a matter of time and money and if we can just keep him alive I know it's going to happen and you have to think that way the alternative is not so good so um day by day and people say that all the time but I think we really love it you

Channel: ALS Therapy Development Institute

Views: 39,671

Rating: 4.8688526 out of 5

Keywords: ALS, Lou Gehrig's disease, Corey Reich, Young Faces of ALS, Amyotrophic Lateral Sclerosis (Disease Or Medical Condition)

Id: rBRPh-k3JX0

Length: 8min 23sec (503 seconds)

Published: Fri Jan 24 2014