Reading Books & Wearing Wigs (for alopecia) ...this escalated quickly 😂

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You know when you order things online late at night and then you forget and then they arrive in the post? Well I did that the other night. This just arrived, this is a wig which I ordered online and a couple of wig caps. Now I tried wearing wigs a couple of years ago when I started getting alopecia, I just wanted to experiment and play around a little bit and wigs I don't think suit me but I also don't think I knew what I was doing (I still don't know what I'm doing at all and I've watched a lot of RuPaul’s drag race and if you want advice on how to wear wigs you should always speak to drag queens because they know best), and also because I have external dysplasia I overheat, my body can't control its own temperature, so if my body temperature rises I cook on the inside and then I pass out, so wigs are not the best for that. Anyway plus I still have about half of my hair I think, I've definitely lost more than half of it, and I like styling my hair with hats to cover the baldness and stuff so I just haven't really experimented with wigs very much but apparently the other night I felt the urge to purchase a wig, so let's try this wig on and see if it's ridiculous. I think the thing with wigs is that you need to style them, you often need to cut them to fit your your face shape and as I said (sorry that's probably a lot of rustling) I'm not very good with that but let's give it a go. Wig caps have to be one of the least flattering things in the history of the world. Something that I think people don't realize as well is that wigs are quite uncomfortable to wear, you know, but they're fun to play around with. Wigs often come with names but this one doesn't I'm not sure what we should call her… I'm I don't know, suggestions welcome in the comments section down below. See this is what I mean by needing to style them, so the bangs are really, really, really long so you can cut them to whatever length you want them to be and then you can work out how to make them work with the hairline because you want the hairline to look as natural as possible. I don't think this particularly suits me, actually, going very blonde which is hilarious because I used to be very blonde when I was young. I’m also not sure that I suit bangs at all. I mean also the thing with wigs is that they look more natural if you're wearing a hat, this is also not a high quality wig, this is a synthetic wig, so human hair wigs definitely look more believable but this would be fun I suppose more for just dressing up purposes, having a bit of a laugh, not something that I would wear on an everyday basis but as I said I probably wouldn't wear a wig on an everyday basis anyway, and given that they look more realistic if you're wearing a hat and I wear hats anyway then… I don't know …why did I buy this wig? I'm not sure. Also because now this is so much hair I feel like I don't look like me at all not just because of the colour but because I am not used to having loads of hair anymore; this is how much hair I used to have, Hermione levels of hair, and now I have very obviously very thin hair because I've lost most of it but yeah I don't think I'm convinced about this but I'll keep it in my wardrobe for a rainy day. I cut the fringe but now I feel like I should be in Wayne’s World so I don't think that made any better. Or maybe with a woolly hat, is that better? I think that might be better, perhaps one to keep for the winter months giving that we're moving into summer but I think it can be rectified. It's a few days later. I've thought some more about the wig which actually you can see up there it looks like a quite flat cat, I need to find somewhere safe to put it. I think when I was experimenting with wigs last time I really wanted something that would make me pass as someone who didn't have hair or something that didn't look like a wig and I just don't really care about that anymore, you can spend a lot of money on human hair wigs that look like human hair and they're amazing and I know that so many people, especially with total alopecia, who really value that and I completely get that but I think for me I think I just want them to be a bit of fun and therefore having a blonde wig which is… I know I'm not that blonde anymore but I used to be really blonde… it's perhaps too close to what I may have looked like if I hadn't lost my hair and I think that is the dis association that I'm getting with myself when I look at it and I'm like “well, it's just it's trying to pretend that it's my hair but I know it's not and I don't like that” so instead I thought if I would like to use wigs in the future and again just occasionally because I can't be bothered to do it every day I think I need outrageous wigs, I think I need bright green wigs, I think I need blue wigs, rainbow wigs, things that are very obviously not my hair and are therefore just a bit of fun, something that I can play around with in a fashion accessory sense like I do with my hats, so I have ordered this pinkish purple hair and this green bob and I'm quite excited to try those on so if those arrive before I finish filming this vlog then I will include them and if not I'll show you in another video soon. Anyway that's wig chat. I don't even think that I introduced this video this is a reading vlog hi we just started talking about wigs, we're about five minutes into it, I haven't talked about books yet it's going to be a bookish video. Yesterday I finished reading Gargoyles by Harriet Mercer which is this book here bright orange and this I was reading for disability readathon Harriet refers to her herself as a as a tourist into the world of illness and disability. She had a life-threatening condition that struck her six weeks after her 40th birthday and meant that she spent several months in hospital, so she's talking about the distance between ….where do you sit in the realm of illness from that point of view? Because she still has this condition. which is monitored, but it doesn't really affect her as much on a day-to-day basis anymore, anyway, I thought this book was fantastic, I'll talk about it in my wrap-up but I finished reading it yesterday because last night I was chairing an event with Harriet with Portobello books in Edinburgh, obviously not inp-person because Edinburgh is very far away from where I am and the times that we live in but it was really fun to share and it was online and they are going to be uploading that q&a to YouTube, I'm not sure if it will be available by the time this video goes up but I will link their channel in the description box down below and you can go and have a look if you would like to check that out. Now, because I've been reading lots of books for disability readathon and as a disabled person that is, as Nicole over at Books from Bed said, “emotionally expensive”, I really love I love that phrase; I would have probably said “emotionally exhausting” but I think emotionally expensive is more accurate. I need something as a bit of a break from the intensity of reading about disabled experiences which I love doing and is really important but as a disabled person it's a lot to live that, advocate (which I do in my job as well) and then also consume to advocate more, so I need a little bit of a break and I'm going to be reading Beneath the Skin by Nicci French, a Nicci French book that I haven't read yet, slightly disappointed to see the size of the text, the text is so small but I have read the first 30 pages this morning and I'm already sucked in, already really enjoying, it's written in quite a conversational way, it's split between three different characters, we're reading the point of view of Zoe at the moment and it's set during the summer in London on Holloway Road which is not that far from where I live and thinking about London in the sweltering heat when you're getting on transport, oh the memories of those times, it says “it was hot but that might give the wrong impression. It may make you think of the Mediterranean and deserted beaches and long drinks with colourful paper parasols dangling out of them. It's nothing like that. The heat was like a big, fat, old, smelly, mangy, greasy, farty, dying dog that had settled down on london at the beginning of June and hadn't moved for three horrible weeks.” I feel that, I feel it in my soul. Also yesterday a pre-order of mine arrived which I am quite excited about so this is Lonely Castle in the Mirror, I mean this cover is stunning this is by Mizuki Tsujimura and it's translated from the Japanese by Philip Gabriel and the blurb says ‘would you share your deepest secrets to save a friend? In a tranquil neighbourhood of Tokyo, seven teenagers wake to find their bedroom mirrors are shining. At a single touch, they are pulled from their lonely lives to a wondrous castle filled with winding stairways, watchful portraits and twinkling chandeliers. In this new sanctuary, they are confronted with a set of clues leading to a hidden room where one of them will be granted a wish. But there's a catch: if they don't leave the castle by five o'clock, they will be punished. As time passes, a devastating truth emerges: only those brave enough to share their stories will be saved. I just think that sounds really, really intriguing today. In work I'm going to film a video, my editor is taking my new children's books into an acquisition meeting next week and me being the over-pleasing over-achieving disabled child that I am still inside, she asked if I would write a few paragraphs so that she could present it to the rest of the team but I think if I film a video about it and talk about it then that may be more useful in general and then I can read it out and they can listen to the text. It's always exciting when new books are potentially happening (touchwood), there is an illustrator that we would love to work with and that may be happening and if everything goes ahead then it will be out autumn next year, so fingers crossed. I'm going to do that and then I am going to go to Mr M's mum's garden, she lives very close to us, right next to us and she's asked if I will take some photos of her garden because her garden is looking really beautiful at the moment, all of the tulips are out and it's lovely, so I thought as I'm taking my camera to her garden to take some photos. I'll do a little montage showing you her lovely garden because don't we love seeing spring images? I will check back in with you with bookish things after I've done all of those things. The green wig arrived and I feel like a marvel character so I need suggestions below what my superpower should be please, this is fun, I quite like it. Lola has been very diligently …what are you doing? Very diligently watching me make a lemon meringue pie which you can't really see because of the oven door. What? Are you cross because I haven't given you any of it? You can't have lemon meringue pie. I don't even think you would like it, Lola. [Lola snorts] Sorry was that snort to disagree with me? so wig number three, secretly a unicorn. I finished listening to the Dead Ground by Claire McGowan last night which is the second in the Paula McGuire series and I still don't know how I feel about it. With the first two when I started listening to them I thought these are really good, they're compelling, I'm enjoying the plot, I like the characters because there are reoccurring characters throughout this series but there's a bit of drama between them that there are too many misunderstandings. I know you have to have misunderstandings in books but when characters could really sort something out very quickly and they don't and that miscommunication stretches across two books that's just really, really infuriating and in both cases the result of the mystery hasn't been entirely satisfying, it relies on putting the main character, a woman, in danger both instances that has happened and I find that a little bit boring and then she has to be rescued feels a little bit tropey but I still also get swept up in it and each of them ends on a cliff-hanger and I think well, maybe, I should try the next one then? And it reminds me of when I was watching the tv show the Stranger, which let's face it we all watched because it has Richard Armitage in it, that was the reason that we kept watching, but I would like the time back that I spent watching that series because I've never seen Lost but it felt like Lost from what I've heard people say about it in that's it’s so fascinating in the beginning so many loose ends that you hope are going to get tied up and then there is no satisfying resolution and you just think “why have I invested my life into this?” so I'm worried that this crime series is going to feel like that the longer on that it goes. I may try the third one but I have had a recommendation of a crime series from someone who says it really reminds them of Frieda Klein so I've started listening to the first one of that let me grab my phone so I can tell you what it is okay… it is Someone Else's Skin by Sarah Hillary and I really love the narrator I think that she's great I mean I've only listened to half an hour of it but so far so good and I will I will let you know as I read more. I find it rather funny that I started this vlog 10 days ago having bought a blonde wig online half-asleep at midnight and not knowing if I wanted to keep it, not that you can really return wigs but you know what I mean. I wasn’t sure that I’d made a good decision and it is, as I said, ten days later and I now own five wigs and I’m having a great time. I’m not going to wear them every day but it’s been fun to play around with them, fun to accessorise, to think about, just play, it’s been fun to play. This is not as I said about passing for someone who doesn’t have her loss it’s just about playing around with stuff and having a bit of fun which I kind of feel like I haven’t had an awhile, so that’s been nice. I’ve also found them more comfortable/less uncomfortable to wear than last time I tried; probably because I have much less hair now. It was probably very uncomfortable before because I felt a lot of pressure cramming my hair under it. Even though it is more comfortable than then, the overheating things still stands but it’s not hot in the UK yet so it’s fine. I was looking up there because I thought someone might shout at me and tell me to take care of the wigs, because I left one up there another clip, don’t worry, I have packaged them away safely, I’m taking care of my hairy children, especially this hairy child, she is the most important child, she’s been sitting in the sun over there, I don’t think she’s that happy that I’ve just pulled her out of the sunshine, do you want to go back to the patch of sun? She’s like a cat. I haven’t finished any more books since I last talk to you but I have read 2/3 of this Nicci French book. I don’t think that I would’ve bought this book is it wasn’t by Nicci French just going by the blurb, I bought it because I love them and I trust him, the back says that it’s about three women who are being stalked by one man, the women don’t know each other, this man is sending them threatening letters saying he wants to kill them and male violence against women is hard to escape in crime books which I completely get because it’s life, but it’s the way that it’s written about often in crime books, it feels gratuitous, often romanticised even, sometimes you don’t hear from the women very often, often a woman is killed, a detective comes in then you’re with the police trying to solve the the crime. In this book you are with these women, you’re inside the heads, its first person, you spend time with these women one at a time. Firstly Zoe, second one is Jenny, I haven’t read Nadia’s section yet and these women are written so complexly and I loved all of their interactions they had with people that they know. Nicci French (husband and wife writing duo) are so good at writing friendships but also just groups of people, social dynamics, dinner parties is one of their specialities, they are so great at setting the scene and making people feel really believable. And what this book does is really examine patriarchy, it’s looking at all of the relationships with these women have with men in their lives, not just the man who’s writing them these letters, but the way the men in general treat them and how toxic that is in some cases, how dismissive it is (which is also toxic), some of the men in their lives are very dismissive of the fact that they getting these horrible letters, they think it’s not a big deal they don’t understand how unsafe these women feel walking around London at night, they don’t understand the things that these women are thinking about on a daily basis, they trivialise the violence and I think that makes this book… it takes his book to another level, it’s not a crime book where… it doesn’t feel like, to me, like they’re exploiting people’s experiences for a good plot. I appreciate they’re also trying to write a good plot but they are saying so much more than that. I am really enjoying this and I will speak about it more in my wrap-up as obviously I don’t know the ending of this book yet and crime thrillers often do heavily rely on ending is whether or not I would recommend it but so far 2/3 of the way through I would very much recommend it. I am going to disappear now. I’m going to edit this vlog and upload it. I am going to be making a video this week which kind of ties in a little bit with my discussion of wigs but I want to talk about disfigurement and disability and the world right now and going back out into the world a little bit and what that feels like. I got my second vaccination 10 days ago now, so in a few days’ time once that vaccinations kicks in, it takes a couple of weeks to be at the highest amount of immunity that you can get from the vaccinations, I’m going to my hospital appointment in person again which I’m really thankful for and very much looking forward to that. It does mean getting on the tube et cetera which I haven’t done for over a year. Anyway I just have general thoughts about the way disability is being viewed at the moment and I would like to have a sit down and a chat later this week about that, so that’s what I’m going to do then but I’m going to stop talking for now and I hope that you all are doing well, I will speak to you very soon. I love you very much. Bye!
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Channel: Jen Campbell
Views: 25,314
Rating: 4.9886684 out of 5
Keywords: alopecia, hair loss, reading vlog
Id: A2D0F-uMX2w
Channel Id: undefined
Length: 23min 43sec (1423 seconds)
Published: Mon Apr 26 2021
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