my MS diagnosis : multiple sclerosis and my first symptoms

what's up everybody how's it going out there so in this video I want to talk a little bit about multiple sclerosis it's not a joke or nothing like that some of you guys know already that I have multiple sclerosis some of you guys don't and I had never really done a video really telling I guess you could say my story about it and then so I thought I would put one out there I've got a fairly big channel and there's a lot of people that get diagnosed with it and when you first get diagnosed man you you don't you don't really know where to turn or what to do or anything you have no idea what the future holds or anything and it's confusing and it's worrisome and I thought I would do a video and just so that way it is here on youtube if you know somebody that's got MS or somebody that's just recently diagnosed send them a link to this video because I might end up helping them out what is multiple sclerosis multiple sclerosis to the best of their knowledge okay is for whatever reason our immune system starts attacking our central nervous system it starts eating away at it and your central nervous system we're talking about your brain and what's it within your spine okay because ms attacks those two places it attacks your brain or what's inside your spine okay that's what it attacks so it's not going to attack like you know your stomach directly it's not going to attack your eyes directly or anything like that but because your search a central nervous system kind of controls your eyes and your stomach it can have an effect on both your eyes and stomach and all sorts of things like that okay and I basically have used the analogy with ms that it's like it's like your brain is a dartboard okay and your spinal your spinal cord and it's like somebody just covering up their eye and they have a handful of darts and they just throw you don't know what it's but part of the spine it's gonna hit you don't know what part of the brain it's gonna hit it just hits and you don't know how bad it's gonna be either sometimes it just eats a little bit away no big deal you don't even notice it you know and there's other times it just it just starts eating away more and more and more and when it eats certain parts away they call them lesions okay and it's it's basically the immune system thinking that the brain and the spinal column your spinal cord is a foreign invader and it's it's it's like it's eating it away almost as if it's like a virus towards its bacteria or something you know and they don't really know for sure what causes it it's it's they don't see any genetic tie so just because you have it doesn't mean that your kids will have it or anything along those lines I'm the first person in my family that I know of to get diagnosed with it so who knows what causes it women get it more than men do and generally generally when men get it it's usually worse generally and the later on in life you get it usually it's worse okay I didn't get mine until my late 30s I think it was I think it was my late 30s my late 30s and because of that it kind of puts me in a little bit of a higher risk for it to turn into what's known as primary progressive okay there's basically two kinds basically all right and the first one is it's called relapsing remission or remission relapsing nurse I can't remember what it is it's called something like that remissive it's something about remissive and relapsing and whatever and what ends up happening is you'll be fine for a while and then you'll end up having a relapse relapse remitting I think that's what it is you'll have a relapse and so all you'll start having and who knows how long it's going to last okay and then after that stops after that attack is is gone then you end up going to like a healing stage or a healing period if possible and that's that's kind of like it goes into remission and then it could be a week could be months could be years it strikes up again it attacks okay and that's the most common one that people get that's the most common one people get and then you end up having primary progressive and pipe primary progressive is a real [ __ ] that's that's the one that there is no remission it's just constantly just constantly eating away and if you get diagnosed with that that is definitely not a good thing getting diagnosed with MS and general is not a good thing but when you get diagnosed with primary progressive you know you're you can kind of figure that you're Kent you're not going to be seeing too many calendars you know what I mean in the future because it eats away real fast and if you're a guy it's even worse but generally women get it more than men and you can have MS and have a normal lifespan right your quality of life on the other hand and each person is completely different because you have no idea what the MS is going to attack and you have no idea on how long or how severe or whatever and so everybody is a little different you might end up having somebody that ends up getting MS and they have a mild attack where they might have a sharp pain in their elbow or arm or something like that and they don't have another attack for 6 7 8 9 years they have another attack and then this time you know maybe they just ended up having a hard time putting words together and brain fog and they need to feel really tired for six months and then you know they get out of it you know you can have them ass like that there's it's very rare but there's some people that will have an MS attack and they just never another one they just never have another one you know it's rare but it does happen then there's people that end up having attacks a bunch of small attacks per year so even though it kind of goes into remission after a couple of months another small one pops up and everything like that now I've had mine for years now I've had mine for I want to say I've had mine for probably eight years I I don't know for sure I'm gonna have to look I'm have to look it up because I've had it for a while now the first attack was the worst and I'll talk about that but I want to make sure that people kind of know what Ms is you know when I first got diagnosed with MS my brother he's like so you're saying that you're one of Jerry's kids or and I'm like no no no no that I said that's that's multiple that's a muscular dystrophy I didn't really know for sure what M has to us multiple scores I didn't really know what it was then I talked to my best friend about it because I was really upset he goes so he's like so your spines all crooked and I said that's scoliosis and I'm like why is it that nobody knows what this is I mean I didn't really know what it was like as much as I do now but I knew it wasn't muscular dystrophy and I knew was a scoliosis you know but it is something that a lot of a lot of people get especially women and interestingly enough a lot of women wound up getting it after they end up having a child who knows why they're still studying a lot of this stuff but they have medication for it the medication does not cure it there is no cure for it the medication it's like Schrodinger's cat you know is it is it helping or is it not helping who knows and that really is is exactly like the MS medication because you can take the medication and because MSS predictable this is what creates a problem you take the MS medication which is extremely dangerous on a lot of them they're extremely dangerous and you don't know if it's really working that's the problem you there is no way to measure if it's working and so you're just you just take it in hopes that it's going to end up working and you know with some studies it shows that this particular medication you might have you know one-third or two-thirds chance of not having another attack and then this one over here maybe 50% less chance or whatever but there's there's no absolute numbers no absolute science that is behind it that can 100% say if you take this you're never gonna have another attack you might take it and your attacks won't stop at all you might take it and you won't have another attack for ten years who knows I ended up taking some for two and a half years and it nearly put me in the grave okay and I had no idea that it was doing the damage to me that it was doing because it's very gradual it wasn't like an instantaneous reaction to the medication and they were injections I had to get myself every day and the only reason why I ended up figuring out that it was the medication that was ruining my life right was because eventually it started attacking my heart and my heart started getting all screwed up but my heart still is messed up I've been off the medication since last maybe September or something like that so September 2017 or whatever and I still have heart issues it's not nearly as bad as it was but for a while there my heart was so bad due to the medication that I couldn't even really get out of bed and I was actually online looking at different cemeteries trying to find an area that had a plot that was fairly cheap because I was so certain I was going to die of a heart attack any day or heart failure because my heart was so but it's not even funny but eventually I ended up figuring out it was a medication and talked to cardiologists and stuff like that and got off of it and I'm not on any current medication the one that I was taking at the time I don't know if they have new stuff but at the time that was the safest of all of them okay there's some medications that you take you have to be monitored after you take it to make sure your heart doesn't stop okay there's other one said after you take it you can have organ failure okay so the medication sometimes is scarier than the goddamn disease to be honest I mean it's scarier than the disease and you don't even know if the medication is going to work and and that's that's the real killer and I'm a person that doesn't like taking medication I definitely don't like taking medication but you know I'm at a point where I'm thinking I might have to I'm getting older a lot of my MS symptoms are being a little bit more apparent if you know some of them have gotten worse but they're showing up more often you know and becoming more and more of a nuisance and I also end up having what's known as etaf syndrome and what that is or they'll call it phenomenon too and what that is is your MS symptoms get worse as your core temperature increases so if I exercise as soon as I start sweating man and my MS gets like worse so when I say my MS gets worse the symptoms from it get worse so if ordinarily if I have some pain in my foot which I do my left foot there's always pain in it if I start my body temperature increases that foot pain increases if you have numbness and I have numbness all the time - if you have numbness in your body temperature increases the numbness gets worse and brain fog that's the worst brain fog and vision so if ms has affected your vision or if it's affected like you know your I don't want to say cognitive abilities it can but like you feels like you're in like you have brain fog as soon as you take a hot shower or you're exercising anything your core temperature increases you can end up having more symptoms until you cool off and then kind of levels out as far as MS goes I mean that's that's pretty much all I really got for you right now they're still studying a lot of it they're still experimenting with different things new medications all the time are coming out stem-cell research they've shown that there is some positive things with stem cell research for people who have primary progressive marijuana always gets brought up what about marijuana marijuana is look I'll put it to you like this if it works for you then you use it and if it doesn't and whatever for me it doesn't help with any of the pain none of the pain at all it doesn't help with at all of the pain the numbness it does okay so the numbness it definitely makes it where it's not annoying but it only lasts for a couple of hours and then after it wears off it seems like the numbness is even worse okay so it's it to me it's almost like a Tylenol or something like you take it when it's just when my MS is absolutely just driving me crazy and I can't have any peace that's when I'll smoke something and just to try to take the edge off up off of it but if it's something I can tolerate I don't even bother okay so with that being said let's talk a little bit how I ended up finding out I had MS I ended up just I was under a lot of stress and I ended up just getting this job at the Veterans Hospital and I was working in the bio med department and it was supposed to be repairing hospital equipment you know but they wanted me to work on some of the stuff with the i.t so they wanted me to I can't remember exactly what they want me to do but they wanted me to kind of go all these computers and I think they wanted me to write something to like I can't remember what exactly they want me to do and they have a dress code there so I had to wear a pair of dress shoes and I hate the dress shoes but I went out and I spent a couple hundred dollars on a nice pair and I thought well this is a nice pair of it's expensive enough ish you know they should be comfortable and at the end of about a week and a half of wearing these things I just started noticing on my left foot was really starting to hurt and it kind of felt like my arch I guess you can call it right it just it just felt like it was always Charlie horsing up you know and it was like the sharp pain and I was like god damn these shoes I hate these shoes you know and it's like I told I told my boss oh my dude I'm gonna have to end up wearing some black sneakers or something because these shoes are killing my foot and he's like well until it heals go ahead and wear sneakers but we have a Jessica know my car right so I started wearing the sneakers then you know and I was it wasn't getting any better and I started having like a little bit of pain in my eye but it wasn't that in my left eye but it wasn't real bad or nothing it was just kind of like a really slight dull ache I thought it was just sinuses or something and I got a call from my sister and she says well mom just had a stroke so you need to come to you know come home to Tucson and I was like son of a [ __ ] so I'm like all right so I ended up going to Tucson and wasn't a stroke she had a brain tumor and they ended up operating and everything but when I was down there my I was getting worse and my foot was turning numb and I was just like I just you know I still didn't know what the hell it was I ended up coming back home and by the time I got home my left eye it was anytime that I moved it it felt like somebody had their thumb and they were just jamming it in my eye and it just hurt like but you wouldn't believe and it was a really dull pain and any time move my eye it just hurts so bad and the vision in it was just it was just going away every day it looked like there was another layer of Vaseline on my eye and I'm like what the [ __ ] is this you know my foot is numb and it hurts real bad and I still just I thought that was still because of the shoes and then my eye I thought it was like well maybe maybe I ended up getting a chemical in it right because I was still spraying guitars and I was still building guitars at this time and I'm like well maybe yeah maybe I ended up like getting a chemical in it or something and this is duty you know chemical so I ended up going down to the doctor and the eye doctor and they were looking at my eye and looking at my and they said you know something I'm gonna have to bring somebody else in here to get a second opinion on this because I don't want it I don't want to tell you what I think I see without having you know the King come in here and do it well what could you possibly see you know and so they came in they looked at it and they said okay listen what we're seeing is optic neuritis and I've heard of optic neuritis before and I knew that it was associated with MS but I still didn't know what Ms really was too much and I said so what you tell me have multiple sclerosis and he goes you might and I think it's impossible it's impossible I have multiple sclerosis you know and he goes what we have to do is a bunch of tests to make sure that you have optic neuritis and I'm like okay so they sent me to these these other doctors and I had a look at these TV screens that were flashing checker things and I had to wear these things on my head it checks the reaction time and all this other stuff of your vision and they said you have optic neuritis and they said you know we're gonna send you to a neurologist to make sure you know to see if you have multiple sclerosis or not and by that time that I finally got to see a neurologist my foot was was always hurting it was always not my I was just absolutely painful I couldn't see anything through it at all I mean it was just constantly like just tons of Vaseline on top of your eye so everything was just blurry and it was just so blurry you couldn't make anything out and the the brightness man did this just looking at white piece of paper hurt my eye because it was just too bright and I was having really bad brain fog really bad and I was having a hard time putting sentences together and I was having very strange thoughts and when I say strange thoughts not like you know I'm gonna kill that no not like that but strange memories and just strange reasoning and one day I was getting ready to go to the the mall and I asked my wife let's go to the mall I can't I said I need you to drive because my eye is messed up and you know when you do something you kind of go through it in your head first before you do it and I was at the front door and I'm like oh Cameron open up the front door I'm gonna open up the screen I'm gonna wait for her to walk through I'm gonna close it I'm gonna lock in I'm gonna do this and everything and so I hear her coming downstairs and I open up the front door and I reach for the screen and it's not there you know and I start laughing and I'm like babe you won't believe this and she's like what I said somebody had stole our screen door and she's like what are you talking about and I said the screen door is gone and as soon as I said that I realized we've never had a screen door right and I'm like oh my god and in my mind it was just as real as the other door and I was like this is not good this isn't good you know and we go to the mall and I'm looking through some stuff to buy some tea for my mother-in-law and there was like this T star and there was this nice little kettle and stuff and I thought I'd get it and so I I put it there and the guys like bringing it up and he said something like it's gonna be 60 or 70 - I can't where was so I took out a hundred dollar bill and I gave it to him and he you know he took it he looked it up and when he you know he looks up at it like this the first thing I'm thinking is I need to show him my identification so that way he knows that it's me on the bill and he knows that it's real so I start taking out my identification right when I get ready to kind of hand it to him I stopped myself in my tracks and I put it back in because I realized what I was doing and thinking and I'm like I don't like this so I got my change and I told my wife we need to go home we need to go home I don't like being in public right now I'm like I don't like what's happening inside my head and I'm afraid because I don't know if this is just the beginning of something or if it's gonna get worse or whatever and I was having a hard time putting words together like in a sentence so if I were to say something like well tomorrow we should go out to the store and buy some ground beef or whatever I'd be like - tomorrow we need to go to the the and it was like that I mean and I know what I want her to say but I didn't know how to say it and it and I was having really bad brain fog and I was confused all the time about [ __ ] and it's [ __ ] scary it's scary because you don't know what the hell's going on and they ended up giving me a brain MRI and when they gave me the brain MRI they said well here's some lesions in your brain this right here are my sinus passages this one is actually this wouldn't used to be clogged I didn't even know it was clogged and they're like we have to roto-rooter that out I was able to clean it out without roto-rooter but anyway this is starting from the bottom and working our way up eyeballs as you can see right here and a lesion is going to look like a white spot that's kind of you you see how this is kind of like brighter than everything else okay like that that area right there okay lesions kind of like that okay and with dye it shows up even more okay and so you kind of have to look at this in layers I haven't looked at this in a long time so I don't even remember where they are I'll see if I can spot them though I went too far on that one um not seeing anything not really seeing anything oh right here's one right here's a lesion okay so there's one that looks like we might have a small lesion right there that looks like one right there okay I'm not seeing anything there ah right here's one right there's a lesion and it kind of keeps going up so this one is like vertical in my brain this is getting toward the top of my head and I'm not really seeing anything else those are the ones that's that just jump out yeah that just jumps out like when you go like this you can just see it just jumps right out and they said that looks like multiple sclerosis so they said you know you've got optic neuritis you have all of these other symptoms and plus you have an MRI that's abnormal this looks like multiple sclerosis but we cannot declare it is multiple sclerosis until we end up giving you a spinal tap so I'm thinking I saw the movie I don't know this so I end up going in for a spinal tap and all of this stuff by the way is taking them forever to do it almost took a year for me to get diagnosed from the first time that my vision was bad up to then it almost took a [ __ ] year because of how slow the damn process is with all this stupid corporate medicine and insurance [ __ ] but anyway I gone for the spinal tap and I have to lay down and there that he's trying to get it into my spine and he couldn't get it in he kept jabbing it in there and he did it like five times and he's just like if we can't get it in on this last one I don't I don't know how we're gonna do it because everywhere I've tried it's not it's not going in and everywhere that he had stuck it in it was just like being electrocuted right because like he would jam it in and it would nerve in my left leg or right leg would just start jumping and it would hurt so bad and he's like oh I'm gonna have to move that over here and he would Jam me somewhere else in her bed it was like five times then finally he had me set up and I had to lean forward and he finally got it in and they ended up draining it and I have a picture of me laying down at night and at that time I was listening to FX a whole lot and so I was doing my salami a heart and everything laying down in the bed and when my wife took the picture of it that was bad the spinal tap [ __ ] sucked but then it came back and they said it doesn't look 100% like a mess but at the same time what it's saying here is saying that it's MX right and he goes and this is what's weird because usually you end up seeing this and this and he goes this is normal he goes but this is abnormal and he goes in that but he goes you always see this with MS and you don't see it with anything else and he's like so he goes heals you have MS and I'm like what whole case but to me it was confusing because it's like okay maybe it's not MS right because if this if this number is supposed to be you know but I have MS you know and he said well you're gonna end up having to start taking medication so it doesn't progress because it is progressive you know it's it's gonna do it's gonna make you deteriorate and I'm like I I'll take my chances to see if if this is the only attack I ever had and it took a long time for my vision to come back a hundred percent in fact it's still not a hundred percent hence why I've got these but I would say it's about 90% of what it used to be my left foot off and on goes numb and there's pain off and on lately it's been bad and it was kind of my brain fog went away and I started being able to think again normally maybe it was about a year after the first attack and everything started healing I was thinking okay finally we're out of the woods a little bit I started having like really bad numbness and pain on my left side of my torso so basically from my waist up to almost like my nipple and then from like about six inches in from the side on to the front and it wraps around to about six inches in the rear started becoming like painful like like a stabbing and it was numb the whole hair is just [ __ ] numb and so I went to the neurologist again I told her about it because it sounds like it's a mess and so they ended up doing an MRI on my brain they said well we're not seeing any new lesions like from the last MRI cuz I was getting an MRI Puryear Amigos and so we're not seeing that he goes he goes I'm gonna give you another MRI but this one's gonna be for your spine and so they ended up giving me one for my spine and it came back and he goes your MS is in your spine okay so ms generally for most people stays within the brain okay generally it does but you can also get it in the spine and I'm one of the lucky bastards it's got it in both and it was eating away a portion of my spine and he said he goes the size of the lesion that is in your spine he goes I don't know how you're still walking because I've seen this before and there's people there people are at wheelchairs right he goes I don't know how you're still walking heels we've got to get you on some type of medication and then after I heard that I'm like I looks like I'm gonna have to get on medication so that's when I said okay I'm gonna start doing the injections and when I had first started doing the injections I felt weird like I felt like there was something that wasn't quite you know right but I figured me was just anxiety or something and then I slowly started becoming like depressed and then the depression became really bad and I was attributing the depression with all of the stress that was going on in my life at the time and I was telling my doctors about I said man my depression really [ __ ] bad you know I'm doing self-destructive behavior it's like it I can't focus I there's nothing that brings me happiness anymore and it's just like I feel so [ __ ] empty and it's just like it's just horrible my life just [ __ ] sucks and he goes well depression is the number one complaint that we get you know neurologists get you know that's number one complaint for MS patients he goes are you thinking about killing yourself and I said I haven't I haven't got that far yet he's like well he goes if you need to talk to a psychiatrist or a psychologist we don't have any here but we can recommend something you know I even call these people because you know maybe we can get it on an SSRI and I'm like am I gonna take SSRIs because I don't do well with them you know and the depression just kept getting worse and worse and and at the time I had a friend that had manic depression and I was talking to him and he's like he's like he's like dude you're suffering from panic depression he's like I have this I deal with it all the time I've had it for years and I'm just like I'm like I don't want to live like this it's horrible you know and I couldn't do a goddamn thing my I was in la-la land I I couldn't you know and at the time I thought that I was I thought it was present I thought I was here you know but I wasn't I was in a really [ __ ] dark place and then I started having heart problems and when I thought my heart started beating irregularly and not just fast not like don't thump thump thump not like that but it'd be like thump thump thump do good because thump thump thump thump don't you know it started doing weird [ __ ] like that and when it would happen I couldn't even catch my breath or nothing it'd just be like you know and sometimes you get lightheaded you feel like you're gonna drop and [ __ ] then I had a look into that and people were like oh this probably PVCs or P ACS and at first it just seemed like it was caffeine that was causing it so I got rid of caffeine and that kind of helped and then a few months later it started showing up again and I started noticing it started happening when I was tired and then I started noticing that I was like really really bad headaches and my sleep was turning into [ __ ] and then they did tests and they said you have sleep apnea I'm like Jesus Christ so I had to start wearing on them stupid masks and everything when I went to sleep and depression was getting worse my heart was getting worse I did a video once where I was trying to walk my dog and I I want maybe not even a block and I honestly thought I was going to [ __ ] die right there I thought I was gonna drop [ __ ] dead I couldn't breathe like I had cold sweats my heart was just weak there were times I couldn't get out of bed because just standing up I felt like I was gonna just die you know and I and it was just so horrible and I literally was looking for places to be buried because I'm like I'm gonna [ __ ] die and then the doctors are like well we can see you in three weeks you know and it was this really bad and then I was in bed for a while and I couldn't take my medication I couldn't inject myself and at the end of a few days of being in bed I was like I'm starting to feel okay so I haven't had my injection in a while I don't want my MS to get worse so I better go get myself an injection so I gave myself the injection with it just an hour to start to have all the heart problems again and I was like wait a minute wait a minute wait am I maybe it's these [ __ ] injections so I ended up quick I just quit taking him and if my heart was still bad but I noticed a slow progression of getting better and also slowly but surely my depression was going away and at the end of about two months my sleep apnea went away the the medication was behind all of that but after about three months or four months of being off of it it was like waking up out of a nightmare and man son of a [ __ ] it ruined my [ __ ] life I was on that [ __ ] for two and a half years and it ruined my [ __ ] life you know and because I wake up out of the nightmare but this nightmare is my reality and there's so much damage that's been done and it's just like this is your life you know what are you going to do and so I'm I've been in the process of trying to repair it ever since I've been off of this medication and my heart is still messed up it's not nearly as bad as it was right I would say my heart is probably about 85% of what it used to be you know and when my heart was really bad it was only about 10% of what it used to be so every now and then I still end up having like Appy ACS and stuff like that and tachycardia and I've gone into afib and all this other [ __ ] and whatnot and that I know it's from the medication and I know it damaged my heart I know it did and there is no there is no recourse for that I've contacted attorneys I've contacted all sorts of people and no one will touch it with a stick so it's just it is what it is something I have to live with and so when you start taking medication for your ms you've got to pay really [ __ ] close attention to it be pay really close attention to everything that's going on report every single thing that could possibly happen I mean like that that you're experiencing walk on it and if at the first sign of anything that doesn't seem right man you know consider consider getting off of it or you know talk to your doctor for sure my neurologist told me goes all the heart problems that couldn't be from the medication he was wrong he was wrong the electoral cardiologists or whatever the neuro electric arc whatever cardio neuro whatever cardiologist she was the one she's like absolutely it could be causing it even right here in the like the fine print it says that it can cause palpitations and this this and this Obama boy it's a rare side effect but it can happen so you know it is what it is when you have MS you know it's it's not the end of your life it's not the end of it first some people they get diagnosed with it and they have a severe case of it and the diagnosis is really bleak right and then your neurologist will tell you okay but if you have like relapsing remitting or remission or whatever they call if you have that chances are you'll then be inconvenienced for a while during the time that you're having an attack and then you'll have the healing process and it never heals 100% I've been kind of lucky because I've been able to get at least 80% back of everything at least some things I've been able to get like 90% back it just depends and even though you might end up being put in a wheelchair for a while there's a there's a good chance that you won't be in it forever right the healing process and you know it's it's actually quite incredible how your body can recuperate from such an attack it's quite incredible and the brain can find new neural pathways to accomplish things you know I don't know so much about the spine but it can end up happening and ms is no joke it isn't it isn't a joke at all when when ms starts attacking parts of your brain that start controlling things like your breathing and a portion of your heart rhythm because a lot of your heart is actually controlled by a sinus scientist notes vagus nerve stuff like that that's actually within the heart the pacemaker within the but at the base of your skull I'm at your brainstem if it starts attacking that game over you know and there's there's a lot of people that when they're ms progresses it gets to a point where they can't swallow anymore and then so what will happen is they'll they'll try to still try to eat they'll try as well they can't do it pieces of food or whatever get lodged in their lungs they end up getting pneumonia then they die from pneumonia and they say they didn't die from MS they died from complications from MS no to me he died from [ __ ] MS they say that you don't die from MS right ms won't kill you but the complications from it will put you in a grave okay so it's I don't know why they tell us that it's [ __ ] you know if if everybody that has had MS you know and it's turning to primary progressive you know it was a mess that wasted him look at Annette Funicello you know it was her she she heard the way that she was living her life before she died was horrible bedridden everything looked all [ __ ] up having a hard time with everything don't tell me it wasn't a mess it killed her Richard Pryor same thing he was all [ __ ] up from him as his MS before he died he was all [ __ ] up from it you know Teri Garr has MS and uug looks like she's had five strokes and [ __ ] because of it you know poor and I feel really bad yeah I mean I have it but I feel really bad for other people that have that have it worse than me I feel really bad for me but because I don't think anybody deserves it you know nobody deserves it and it's it's it's so [ __ ] up that you're kicking your own ass you know and you know that was one of the jokes that I was saying it's kind of like it would figure that I would get a disease where I'm kicking my own ass because essentially that's what it is you know it's almost like God says I've done everything I could have tried to kill him it looks like the only way that I can get rid of this guy is if he kills himself you know and he's like he's not going to shoot him so I'm gonna have to have his immune system waste them I don't know I'm kicking my own ass and my immune system actually is a great immune system it's tough as [ __ ] nails I mean I could eat an AIDS sandwich with a couple the Ebola push up pops and I'll be fine because my immune system is that good and maybe that's the problem maybe it just got so bored in because it's like I'm tired of viruses I'm tired of bacteria [ __ ] I'm gonna kick my own ass I don't know maybe that's that's what it is but you know everybody's story when they end up having MS when they first get it that's just their first story your but you're gonna have more as time progresses you're gonna have more and one thing that I can I can tell you that I know from my own experience is that there are certain things that trigger MMS attacks right at least for me if I avoid these things it's it's just as good as taking medication at least for me okay the first is is don't eat anything that you have an intolerance or an allergy to and you're gonna have to find out what that stuff is by eliminating the stuff from your diet and then reintroducing it slowly okay but for me I can't have anything like dairy okay a little bit of cheese is okay but dairy in and of itself is my enemy okay and they've actually done Studies on that and they have found that for whatever reason people that end up having dairy and MS the dairy makes their MS worse but cheese not so much who knows why okay also I need to avoid for whatever reason I have to avoid the amount of sardines that ate okay when I first had my first attack I was eating [ __ ] loads of yogurt sardines [ __ ] loads and I don't know there's any tie between this or not but over the past few decades at Sardinia the little island over there near I think Li Sardinia has had a huge influx of MS patients just a shitload of of just pop up out of nowhere and they don't know why the island is being hit with soul so much MS they don't understand it because it's you know it's an island and there's not a lot of people going to and from and there's not a lot of import/export type of stuff you know so it's an island so where in the hell is this this ms coming from good question sardinia sardines I don't know I don't know what it is but just trying to avoid things that you know you shouldn't really eat and you know if you eat and this isn't a cure okay but if you end up eating like organic raw vegetables and stuff like that it can help you it can help you is it going to be a cure probably not you know but if you can stay healthy and everything else and you avoid the things that are bad for you can definitely improve your quality of life and there's a good chance that maybe you can actually put a little bit of MS acting up to the side at least for a while and you're gonna have people all the time can I say hey have you heard about this new marijuana cure hey have you heard about this doctor that she ended up having it and she ended up changing her diet and now she's cured hey did you hear about this guy that cures some people with MS with with faith-healing hey did you hear you're gonna hear this [ __ ] all the time and let me tell you something all the people that are telling you this they might have good intentions but none of them are doctors all of that stuff is [ __ ] there's no science behind any of it that's accurate okay and I'm just I'm just being honest with you so if you want to change your diet to something where it's all raw food and it's all vegetables and everything like that more power to you give it a shot if it works it works if it doesn't it does it - everybody's a little different you know if you want to be taking CBD oil because you think it's gonna cure you and it actually helps you more power to you for some people it might it might help them for other people it doesn't for me it's like I help me you know and I had tried going vegan for a while my quality of life I felt I felt better I felt cleaner you know internally but it's something I can't keep up and I'm gonna meat-eater I can't keep up with that but you're gonna hear all sorts of fruitcakes tell you that they have a cure and they know a cure and it's gonna start annoying you and their people if you have a youtube champ you're going to post links and everything like that and like I said it's well intended but I ignore all of them I ignore every single one because when I first got diagnosed I looked in Reese I looked up everything and I researched everything so all of these things that people are sending me links to I've already looked into you know this isn't this ain't my first rodeo I've had it for awhile and I've looked for a lot of [ __ ] on repairing it I bought tons of books on it you name it so there's really nothing that anybody can tell me about it that I don't already know unless it's new information you know but that's my that's my story guys that's my gist of MS basically what it is what it's kind of like to have it for me I still have brain fog I still get brain fog all the time it's not as bad as it was you know back in the day oh and then this is another thing you are going to be tired all the [ __ ] time right like I am always tired I I always feel like I haven't gotten asleep I always feel like that and I have to push myself constantly to get anything at all completed anything at all you know and when I walk my dog it's like I feel like I've accomplished something major because every step I'm like I don't want to do this I'm so tired I don't want to do this but after I walk two miles three miles he like he did it you know you [ __ ] did it you didn't want to but you did it and you're gonna feel tired a lot there's some days you want but you're gonna feel tired a lot and quite honestly if you feel that tired just stay in bed and rest you know quite honestly trying to get up and do a whole just stuff usually does some more damage than good it's okay just take a day off you know take it two days off if that's what it takes there's days that I have to do that still or it's like I wake up and I'm just like I'm so [ __ ] tired I can hardly do anything you know I might be able to edit a video I might be able to do a little bit of maybe some fretwork or something and even then I'm so [ __ ] tired I can't do so I'll just end up laying down you know it's like I'm done I can't what I can't do anything you know and that's one of the things that you have to deal with with MS you know there's times that you'll also be clumsy you'll drop things you'll be holding something then it just falls and you're like I don't understand why it keeps falling out of my hand you'll pick it up and it'll fall out of your hand again you know that will happen then when I'm working on the computer and you know you've got your mouse and you're moving and you move it over and get ready to click first for some reason if I do that and I get ready to click a lot of times right before I get ready to click my arm will jerk and it'll go somewhere else and won't click and I don't know why it does it it's nerve you know your nerves are all screwed up I got I have a lot of little tort-like tweaks towards tweaks and I got all sorts of stuff that has kind of [ __ ] up with my nervous system because of it and even sometimes it affects my speech still you know and I know that because I all sometimes watch one of my videos and I'll be like what the hell am I talking about because I'm using the wrong words I'm miss speaking you know I might have done it in this video for all I know and I never used to do that but you know you're having your brain attacked what are you gonna do and it's not always 24/7 under attack if it is yeah primary progressive you know you go through small bouts and then it goes into remission you know but it sucks nobody should have it it's [ __ ] it's it's it's not cool at all but we've got it there's some of us I've got it they have the MS it's not that immensely it's like it's not - MS Club what the [ __ ] is that that's the MS Multiple Sclerosis Society of California or the United States or whatever and they're online and they have a bunch of information resources and they have MS walks and they try to raise money all the time for the cure for MS and stuff like that you can check them out just be careful where you get your information from because there's a lot of people out there that like to think they're doctors when they aren't there's a lot of people out there that are these new wave a new age or these homeotic homeopathy whatever you call it homeopathy whatever doctors and chiropractors and everything that wanted they think that they can cure your MS they're full of [ __ ] there's snake oil salesmen you got to be really careful you also have to be careful of even your regular neurologist I mean really do your homework on everything guys just do your homework on everything because ms is not completely understood yet okay it's not completely understood yet but that's my story that's my video hopefully you learned a little bit of something from it and if you've just got recently diagnosed with MS relax a little bit relax a little bit because you're not going to just be walking then all of a sudden it relates or it'll just give out it doesn't happen like that it's a slow progression you'll start feeling a sharp pain or something maybe a couple days later it turns into a little bit of numbness and then a couple of days later it starts starts feeling weak so it's always a slow progression right at least in my case I've never heard of anybody just walking then all of a sudden like they have nothing I've never their legs I've never heard that before the pain can be annoying and it can be bothersome and whatnot and since it's neurological there's really nothing you can take for it but usually it will end up going away unless it's something that you unless unless it's really far in you're really far in to your with your MS I know Montel Williams his MS he's always got pain he says his feet and legs hurt all the time and he smokes weed all the time for it you know and if it works it works you know for me mm-hmm you know for me but for some people it does so give it a shot you know anyway that's that guys I don't think there's really too much else for me to say this turned into a long video 51 minutes right now 52 minutes didn't intend it to be that long I think that's that anyway guys until next time talk to you later

Channel: Will's Easy Guitar

Views: 176,011

Keywords: multiple sclerosis, ms, ms symptoms, multiple sclerosis symptoms, lesions, MRI, dye, gallium, optic neuritis, numbness, pain, symptoms, diagnose, my story, how did i get it, medication, complications, what to expect, nerve, damage, brain, immune system, my first symptoms, agressive, primary progressive, remission, remissive, relapse, copaxone, signs of MS

Id: cFczbFIZi_s

Length: 51min 43sec (3103 seconds)

Published: Tue Jun 19 2018