Living with Multiple Sclerosis - Emma

I was diagnosed in 2007 when I was 27 I'm fiercely independent and it was something I didn't think I had to worry about going into hospital that day so I was sitting on the bed and the doctor said you have from the scans that we've done and we we believe that you have multiple sclerosis and I'll inaudible you know I didn't know what it was and multiple what you know all of all of this this thing I raged for awhile because I have I had a lot of living to do and this was a huge inconvenience and the way my MS was manifesting itself was tingling in my hands and feet and also double vision and I was having a lot of fatigue a bad day for me would be waking up tired even having had a good night sleep gone to bed early or at a reasonable hour and I wake up and I'm tired and has come you really really bizarre there are some of the strangest things whether it's you know not being able to remember things see I can remember something we're not beginning to remember things having something to say but not being able to just pull those words out to trip to feel like you're drunk and to feel like you just want to collapse and heat because you're so tired even though you've had a perfect night sleep EMS has been such a bizarre thing that being able to laugh and to be able to enjoy this bizarre journey that my mom I see that as a massively important thing in 2010 set up a meet up group for young people with MS and I based it in Dublin because I knew that there was a large catchment and I knew that sometimes we need a little bit of anonymity when we're starting off introducing ourselves as a person with their met MS is with me all the time and it is some days I come to terms with it is a something that I did every day and there are certain things that I do to make it easier to cope with life and managing a mess diet and nutrition and exercise well they seem awfully boring they are part of why I'm unfit and healthy when I was first diagnosed I was able to get in contact with an MS our local community worker Mary Leonard and she came and visited me and we were able to speak openly about what ms was going to mean for me but also how I was now and over the the years since diagnosis and living as now as a person with MS I have it has been really good because I've been able to access counselling thanks to miss Ireland and also that I know for some of my friends they get their iris access physiotherapy and there are yoga classes and mindfulness meditation and just different supports that is Ireland provide us again back to this analogy of there being an MS family flag M asam is the big sister you know you don't really want to talk to them all the time but that's not a certain times you just want you just want the advice and I know that the advice I get from the people in ms Ireland over the years once I might have disagreed with some of it the friends and the people there have have saved my life on numerous occasions also the helpline when I was first diagnosed remember speaking to Chris and really she did bring me back you know and more recently with with them having a tough time with it being in taxes counselling has also changed changed me for the better but it means that I'm able to sit here and talk to you you you

Channel: MSSocietyIRELAND

Views: 138,942

Rating: 4.9072304 out of 5

Keywords: Emma, Final, GRADED&AUDIO, AFP, H264, mov, high, Multiple Sclerosis, MS

Id: tlCPNycNPQM

Length: 5min 41sec (341 seconds)

Published: Fri Nov 02 2012