This video is long overdue but it's a complicated one and I've been
wanting to see how I'm feeling to really say what's up because things are changing fast
here. One time you're thinking you're totally fine, healthy, you beat the lyme, you're good
to go, finally! The next day, can't feel your fingers! So I just wanted to make this video because I
realized this is probably going to be a long road and to wait until it's done, it might be in
one month, it might be in one year, it might be in 10 years, it might be until I die so might as well
just make the video now. For this I want to say that this video is not intended to have
anybody feel sorry for me or something like that, I just want to share my story so that... I
am sure that there is somebody who needs to hear this, I don't know who you are but I feel like
there is somebody who needs to hear this and I really hope that that somebody will click on
the video and listen to this because I think that there are so many things that are not said or that
you just don't know when you get the lyme disease that there are so many things i wish
somebody told me 10 years ago and that would have made my life so so much easier and that
would have saved me a lot of time, a lot of money and i wouldn't have had to say goodbye to a lot of
dreams of mine. So this is for you, whoever you are! I would quickly say my story
for those who don't know. I got diagnosed with lyme disease in
2012 so almost 10 years ago and I got sick actually nine months before that in the
summer, I got the tick bite and I got really sick and my doctors, love them to
death, send me to every doctor almost to see what's up with me and they couldn't
find, every doctor that i went to said I'm totally fine and I started to feel like a crazy person
spending like all this money, okay I was in Estonia so everything is free, health care is
free if you have the insurance from the government and so i was just feeling like I'm
wasting doctor's time because everybody said that I am like the book example how people should
be, that I'm so healthy and I was a professional athlete, I was playing for my national team, I was
playing for NCAA in America so I was really practicing twice a day, I was in really good
shape before I got sick and so everybody wanted to help me because I
was the national team player you know, I was the bright future of Estonia and so they
really did try to find what was wrong with me but they couldn't and then we were
still trying to figure things out but then I had to go to America because
the new school year was starting and I did start to feel better on my own
without any treatment so we just kind of let it go and I flew to America and I felt
better so i thought it's gone whatever it was and I played the whole season, very
challenging NCAA women's basketball and after the season Ijust totally crashed,
I felt really tired the whole season but if you're an NCAA athlete you kind of expect to
feel tired you know if you're playing every game in starting five, you are supposed to be tired
you know so and to add school work and everything so I was really tired but i felt like yeah
you're supposed to be tired, you're doing all those things. And then after
the season ended I just crashed, my body was just done with it you know and I could not even, some days I just had to take all the strength that I had in myself
to just go to a bus to take take a bus to school and that's when I knew that
whatever I was having, I still have it and so I went back to the doctors and I got diagnosed
with lyme disease. Well that was also a long long road to get to that point because I
had to switch doctors because literally somebody tought I am a little bit crazy maybe because I
googled my symptoms and I was like I have this and then the doctor was like, this is not
something that doctors acknowledge as a disease so basically like he literally thought that I'm
crazy and was like, you know... But then I went to another doctor and they did all the
tests and they were so helpful and thank god they found out that I have lyme
disease and I did two weeks of antibiotics just take the pills and that was supposed to be
it, you were supposed to take them and then you're supposed to be healthy and I did feel much better,
I did so much better actually and I did believe this, I did believe that I am okay now and I went
back to Estonia, the season was over, I started playing with my national team right away but
then I just felt like I was still recovering from everything so I couldn't even play
all the national team (games), well I actually played few games but I shouldn't have and then I
was like halfway through, I was like I'm sorry coach, I'm not coming to wherever they were flying
because I just can't, my body just doesn't allow me to work out to play basketball and
I went back to the doctors and the doctors told me yes it is normal for you to feel tired and feel
all these things, it's gonna take a while until you recover. Okay and so after the doctor said that
I should just recover and rest, I basically had eight years when I felt like something is
wrong with me but I kept going to their doctors and they kept saying to me that I am fine and that
all the tests that I did, they sent me to another doctors to see if there's something
else wrong with me and they just said I'm fine and and they couldn't find anything and nobody would
do the lyme test again and nobody would say that the way I'm feeling is because of lyme
disease and then last spring I totally crashed like I was feeling so tired, I
had constant brain fog, I was dizzy, I was tired and I was just like, no, stop, like I'm
not playing this game anymore and luckily I had somebody who is a doctor and
who was willing to work with me and who helped me to get to hospital so that they can do the
test that I needed to find out if it's still lyme disease and so what they did was that they took
a sample from my spinal fluid to see if I have neurological lyme disease and I did have it
and if it wasn't for that person I wouldnt have had a chance to go to the hospital and do this test
and that is that is insane, you know that even when I was in hospital I wasn't feeling my, my two big toes were numb for a year by that time, I was feeling my fingers, my fingers
were getting numb, I was feeling constantly so exhausted and even then in the hospital they
would do every test there is to do, they would do MRIs, MRTs, they would do everything but they
would not want to do the lyme test to me even though they know that I have had lyme and that
these symptoms are lyme symptoms as well and I had to literally beg the doctor, please I need to
know, can you please make the test and luckily she agreed to do it and she did
it and a week later I found out that I have neurological lyme disease and I am so sure that
it's still, it is not a fresh disease from another tick bite, I am so sure that it's been
going on since 2011 and there is no way for me to say that but the whole time I've been going to
doctors trying to figure out what's wrong with me and I don't believe that it's another
fresh tick bite, I don't believe that and so I got another treatment, three weeks
of antibiotics into your veins so they will inject it to you in the hospital
for 21 days in a row and that is for the antibiotics to go through the blood and
brain barrier and get to the spine and kill the bacteria there and I did feel better but not quite there yet and so we followed
it up by a lot of like herbal remedies I was taking so many supplements like
vitamins and stuff and then we did another like natural antibiotics just to, just
to kill it off if there is anybody still moving and yeah sometimes i felt worse,
sometimes better, when I felt worse we changed it up a little bit and this january and february I felt so good, I felt better than I have felt for 10 years and that was
insane to me, like I remembered what it's like to be a healthy normal person and how I'm supposed
to be feeling and that is crazy, you know like you actually forget what it's like to be healthy
and to be normal you know, like I'm functioning, I can do most of the things that everybody
can as healthy people but I don't have the same energy levels and I don't have
the same, I don't know I've been always looking at my friends and be like, how do you
have so much energy for all those things and I'm just been looking at their
energy of life and I've been jealous you know I've been like I wish I had all this energy to do
all those things but I don't and now I know why so this is my story but what I want to say I just
want to give some recommendations that I have learned along the way that I think would be really
beneficial to other people who might be struggling with the same problem and I want to say this, what
is insane to me is that there is a disease that is very common, a lot of people, hundreds of thousands
get it every year, that you get it and then there is a treatment protocol which is antibiotics
for two or three weeks depending what you have and then it's done, there is no other treatment,
there is no test to see if you still have it, because the test, how they see the lyme disease
is they are looking for antibodies in your blood so they are not looking for the bacteria
because the bacteria is so small and it can be like, it might not be in the sample that
you're taking you know so it's like a game of luck if you just look for the bacteria
so what they're doing, they're looking for antibodies that your body is trying to fight
with the lyme and so the problem is that even if the lyme is gone, you still have the antibodies
for years so there is no way you can do the test to see if you have it. I mean they're, they are
doing some tests and see if the antibody levels are rising and all that cool stuff but like
your immune system might be so messed up that you don't even produce antibodies you know like
it is so difficult to see if you still have it so for a lot of people who have lyme they
don't go and try to make the test if they still have it, they just look at their symptoms,
if their symptoms are still there then obviously there's still something going on you know and
then you have to differentiate between whether I still have the bacteria inside of my body or
whether it is the damage that it did you know so like it is insane you get
sick, you have symptoms, then you treat yourself and then you have to... if the symptoms prevail
then they don't test you again and they say the lyme is gone, they say it, like it's, it seems
almost like it's a faith that the doctors have that they believe that the lyme is gone even though
you have all the symptoms that you had before and and it just doesn't fit into my head how is
that possible? How is that possible that I went back to the doctor, said that I had the
same symptoms that I had before coming back and he said it's okay, it's normal, it takes months
to recover. Like how do you know that it's gone? You're not testing, symptoms are there, what
the hell are the symptoms then doing there? And if it is like after effect then
why, what is broken inside of me like it damaged something inside of my system right
then what? What did it damage? Can we measure that, can we heal that? Can we
help that? Maybe it's my brain, what is wrong with my brain then, what can I
do to help heal my brain? Like no, they just send you home, say: recover, sleep, rest and then you
rest for eight years waiting for it to go away magically! Ahh but it's not going
to go away, it's not going to go away on its own you know and the thing is your immune system
can kill the bacteria, the lyme bacteria okay and it is constantly trying to do so, it is
trying but it is fighting with a bacteria all the time and that is a lot of stress
on your immune system so your immune system becomes overburdened with that ongoing war you
know, so sooner or later you're gonna have a breakdown, your immune
system is weakened, you know so the thing you can do for yourself, the main thing
you have to do for yourself, you have to be your immune system's best friend, you cannot, you cannot
do anything to compromise the immune system, you have to support, you have to give every support
that you can to your immune system so that it can keep the bacteria under control, that is the number
one thing and how do you do that? You can look it up on the internet, it's everywhere, what you
can do for your immune system! You have to sleep well, in the right time, you have to eat well,
you have to not drink alcohol, you have to take vitamins, you
have to make sure that your body gets all the vitamins that it needs and
it's a lot of work you know. You have to put your immune system and what it
needs the first every single day and and that is my number one recommendation
to sleep well, eat well, don't go and exercise crazy, like don't, like okay a little bit medium is ok, some workout is good but don't go and kill your immune immune system with having to
recover from hard workouts, physical work try to avoid physical work and try to not
work out too much because every workout means that your body needs to recover and
it takes a lot of energy and you have very limited amount of energy left after your body is
fighting with something like lyme disease you know So yeah this is my number one priority
to just be your immune system's best friend that is the best thing you can do for yourself.
Second thing that I want to say is that take responsibility for your health and don't
blame the doctors! Yes I know, so many doctors that don't know enough, you know, they just
are not, they just don't know enough about lyme disease to help you you know and it makes all the sense in the world because first of all lyme disease was found, the bacteria
was found in 1982 so it's been less than 40 years that we know about that bacteria you know so
it's a relatively new thing like it hasn't been like probably hasn't been around
for thousands of years so that people would know so much about it. There is so much research
being done but you have to understand that if you go to your family doctor, he's not
gonna be a specialist in that and the problem with me, my mistake was that I was expecting that
my family doctor knows everything! There are over 10 000 different diseases and you expect
your primary doctor to know everything about all of those? They have to know everything, they
have to know everything but it's not possible, they are humans, they are trying their best you
know but they are not specialists in lyme disease and they're not supposed to be! Maybe they are
supposed to understand that okay this person needs a specialist in lyme disease but don't expect them to know things, especially with lyme disease the research that is being done
in the recent year, there has been so many new things coming out about the bacteria
and how it behaves! Like the research is being done right now you know and new things
are coming out every month you know so I mean I know people say that don't google your
symptoms or your disease and don't cure yourself but I say go ahead, go and google everything
you can about lyme disease, go and read all the articles you know, like certified articles about
lyme disease, there are so many that show you why the treatment with antibiotics is not working for
you and it has the most logical explanation and that is that bacteria are clever, they are evolving
and they don't want to die and they have their defensive mechanisms against your immune system
and against the antibiotics and what happens which is shown lately with research is that
antibiotics are not effective in a lot of cases because the lyme disease bacteria can
can hide in the body, it can hide behind a biofilm and antibiotics are not able to kill the
bacteria that are inside the biofilm communities and that is why when you are getting your
antibiotic treatment, it kills the all the free bacteria that is running around in your blood
but it's not killing the ones that are hiding in the biofilm communities and so you're feeling
better because all the active bacteria is being killed right but then after a while the ones
that were hiding, they come out after antibiotic treatment is over and you will get
a flare-up, you will get it back, you know they will gather their strength and start messing
up your body again you know after the treatment and that is, a research has been done
and it has been found inside of human bodies the biofilm matrix basically so
it makes all the sense that you know antibiotics work when it is early stage and they haven't
formed any biofilm communities you know when when it's just all fresh and they're just in
your blood, yes if you get treated right away I really believe that you
get rid of the lyme right away, I have had many friends and family that got the tick bite who got
the antibiotics right away and who are fine you know but if you have it for a longer time and the
bacteria has time to like settle in in your body it's not going to be that easy and I think that's
where the problem comes is that because there are a lot of cases when you know the antibiotics work
so well, that's why the doctors think that yes it should work and they see the success
stories all the time where it works you know so they get this idea that it's
a bacteria that is really easy to kill you know and the disease is easy
to handle but then there are cases harder cases and they are not in your head! If
you are one of them, they are not in your head just look around, do the research, you can
see people like you all around you, all over the world who say that you know, they are
still not feeling good, doctors will say that there is nothing else they can do,
they can't treat you anymore and and you're on your own you know but there are
doctors who can help you, you just have to find them, you have to find them, you have to find
people who are specialized in these kind of things and who are up to date with the recent
research you know. That person is not going to be a family doctor probably! But don't blame the
doctors, there is not one doctor that I have met that didn't want me to get healthy you know,
like they doctors become doctors because they want to help people to get better, they want to save
lives, they want to have people live better lives and I believe that with all my heart and I
know that there are so many conspiracies with like oh doctors want to keep their patients sick
so that the patients would keep coming in and they could make much more money Like no, I haven't met one of those
doctors yet, doctors want you to get well, they are humans, they feel bad for you to see that you're
sick for years and see your dreams broke and see you being unhappy and getting depressed and
everything, they don't want to see that, they want you to be healthy but maybe they just don't know,
maybe they don't know the research, maybe they're just not up to date or maybe they work in a
hospital that doesn't allow them to treat yourself the way you should be treated! For example if there
are insurance companies involved which is a big case for example in America, in the United States the insurance companies have way too much say about how things are treated, there are
actually active court cases going on right now where people who didn't get treated with
their lyme because the insurance company doesn't allow doctors to treat them any more
or any further than you know the three-week antibiotics! I'm like looking at those cases
and really hoping for those people to get their justice but just know that some people,
some doctors are limited in what they can do and some doctors in America for example
went out of their way, they understood that their patients are still sick and they gave them more
treatment and they lost their jobs, they lost their license because they went against the protocol
that is given to them how they have to treat lyme but their patients got better, they saved lives, they made people's lives so much better they risked everything and they lost
everything but they saved lives and they helped people when everybody else
was telling them I'm sorry, I can't do anything and that's messed up you know but so just
find, you know find the person who can help you and don't blame your doctors, it is your
health, you are living inside of your body and you have to take full responsibility
for your recovery and for your treatment if it's not working out for you, find a new doctor,
I'm not saying that treat yourself here on your own, I think that's really dangerous
and you shouldn't do that but if not, if something is not working for you or you're not
getting help, find somebody else, find somebody who can help you because there are people who
can help you, you just haven't found them yet Another thing that i want to say is that there are
so many people who have experienced that you feel sick and then you are told
after they do the treatment and after you're still not feeling better, then you are
told that it's in your head, you are imagining it and I definitely had times when I was
going from doctor to doctor and everybody was saying that I'm totally fine but I started
to question myself, I was like am I imagining it am I really sick or maybe I am making it up
you know, maybe and there were times where I just ignored all the symptoms and I ignored
my body and I ignored the way I was feeling I was just telling myself I'm fine, I'm healthy,
all the doctors say that i'm healthy, you know if they are saying that it's in your head, that's
a very complicated situation to be in because a lot of times they write it in your documents,
right in your medical documents that maybe you're a little bit crazy you know and then not that many
doctors are gonna take you seriously after that because the first thing they do, they open your
story, they see this little remark, it can be in his head and that might be it, that might
prevent you from getting the help that you need and the only thing that I'm going to say is that
like it can be in your head! Lyme bacteria is capable of going inside of your brain you know,
I have neurological lyme disease that means that the bacteria went into my spinal cord so it can be,
it can physically be in your head and it can be altering your mind and causing you psychological
disorders, yes absolutely and also think about it if you're living with something that is constantly
dragging you down, that is making your immune system weak, that is making you... you don't know what what is wrong with you you keep being ignored by doctors, there is no
good cure or testing available for everybody and you're constantly fighting with
it and you're constantly feeling tired and the brain fog and all the symptoms that you have,
these symptoms are scary, some of the things that you are feeling, they are scary, you know it
is scary to go and get MRI for your brain because you're starting to imagine that you have a brain
cancer maybe, perhaps that's what's wrong with you you know it is a lot of stress, it is a lot of
stress and you cannot think that it's not gonna affect you mentally, it is absolutely going
to affect you mentally, it is putting so much stress on your mental health,
you're not some kind of superhero that is not supposed to be affected by this
hard, very hard disease, it is affecting you and it can cause you depression and it can cause you all
kind of mental disorders you know so like yes like it can be messing up with your head but that
doesn't mean that you don't have the lyme disease you can have, you can have
depression from lyme disease and also have the lyme disease you know so if
people, doctors diagnose you with depression or with any other thing or say that you're
crazy, okay doctors don't say you're crazy but they diagnose you, then you know it is possible,
it is very hard disease to deal with, it puts so much stress on your mental health and
you need to take care of your mental health and you need to check your mental health and
understand that it is possible that you are having those mental disorders from having to
fight with this disease for so long time you know so like don't ignore it but don't
think that you're making things up, don't, like i I did that and I wasted my time to get treatment
because I was like okay, everybody's saying I'm good then I must be good you know but no, you know, you know deep down in yourself, you know if you're sick or not, you know if you're feeling okay
or not and nobody can tell you that you're not nobody can tell you you're crazy you know if
you know deep down that you're not feeling good yes it can be affecting your mental state
but but believe in yourself, believe what you feel, your gut instinct is
very rarely wrong you know so if you have a feeling that you still have it
like keep digging, keep trying to find, keep testing, keep trying to find
something that helps you, you know it can be in your head, it definitely
has affected my mental state like the dreams that I had to give up, I practiced basketball for 16 years I was so good, I was in my national team, I was
one of the best players in my national team I was a really good player and I had worked
my whole life to become a EuroLeague player and I was was at that level already, I was ready
to go to EurLeague but it never happened to me because my body did not allow me to work out
anymore, you know I have given up so many dreams I've given up so many dreams and that is hard, that
is gonna take you down, that is gonna break you a little bit you know and even now like two weeks
ago I got my lyme disease symptoms back, I felt my fingers and my toes went numb for many days
many times in a day, I felt very strong brain fog I felt super tired, I was in bed for two days just
sleeping and that was psychologically so hard for me because I was feeling so well
in january that I was so sure that I have beaten lyme, that I don't have it anymore and
that was really hard to accept you know and I know exactly why I got the flare up,
I know exactly what I did wrong and it's hard to accept this you know
but it is what it is and i mean you can cry about it if you need to cry,
cry! Cry it all out but the next day wake up and think logically, think what made it
happen, why are you having symptoms again what caused the flare-up and what is the next step
you're gonna do to recover you know because getting depressed and sad and everything it's
it can happen but you also have to have a plan you know even if you're feeling sick even if
you're not feeling good at all, you don't have any any energy to deal with this but
you have to, you have to find it in yourself and you have to have a plan, you can't just
wait for it to go away because it's not going to go away on its own, you know, you have to
call your doctor, you have to make a new plan that's just how it is, lyme disease can cause
you all sorts of problems and you have to deal with those problems you know and one of the
problems that there is with lyme disease is that some of the symptoms are so broad that they can be from many things you know for example my biggest symptoms is that I have
a very severe fatigue and I have constant brain fog, dizziness, I can't concentrate, my memory
is impaired, I can't remember things you know and my thoughts are not clear like
when I sometimes even try to make a video for my channel but I can't put everything
together, I forget a lot of things you know so um so these symptoms, like a lot of diseases
can cause tiredness and brain fog but you need to go and
look inside of them, why are you feeling tired you know so yes your body is fighting the
bacteria but what else, maybe from that you have maybe you have not enough vitamins you know so do
the blood tests, see if you have all the vitamins right, for example, I didn't have enough D-vitamin, I didn't have enough B-vitamin a year ago so now that I start to take them I am feeling much
more better because my body can fight with them another thing that we found out that my body is
not producing cortisol, very important hormone that you need to function very well you know and
if you don't have cortisol, you don't have energy and that's where, that's where my tiredness comes
you know, you can make a test like I made a test you take the cortisol, you measure the cortisol
levels four times a day, in the morning, lunch afternoon and then before the bed and cortisol
levels are supposed to go up in the morning and then level off by the evening but
my levels were just non-existent so my body is not producing enough cortisol but it is producing
a little bit, there is a long road from having normal cortisol levels until having none so if you
are like over here, the doctors will not see you they will not diagnose you with anything,
they will not treat that with anything but you're one step away from having your body not produce
any cortisol for you and having to take hormones for the rest of your life, you are over here that
already is a big problem you know and you can find out this on your own, you can do the cortisol
test and see if maybe the reason why you are tired is because your body is not producing cortisol
you know so and if that's true then you can see with your doctor what you can do to support
your your adrenal glands you know and how to get the cortisol levels up again so that your body
can function properly and you can have a fulfilling life where you feel energy to do the
things and to dream and to work and to do everything that you want you know so like
if you're just feeling tired like find out why, what is it, what is not being produced in your body,
is it just the stress from fighting the fighting the lyme disease or did it
already damage something to a point that you can measure it and then you can start
to support those things you know so like you you it needs to be approach this scientifically
you need to, you can do tests to see what's up and then you can start supporting those
things along the way as you're also trying to find the treatment against the lyme bacteria
you know and there comes a point when for example for me I don't know if there
is lyme bacteria inside of me right now I don't believe that there is a test that can
show that to me and perhaps it's not, perhaps i don't have but I am dealing with
the after effects you know that something that the bacteria damaged something and now every time
that I am stressed it comes out, it flares out there's another thing somebody
explained to me really well and basically thing with Lyme is that no matter how much you sleep
you're not gonna feel more energy you know that's that's why it's not a good strategy
to just rest and think that it's gonna go away because it it same as if you would have your
phone die off, the battery dies and then you would switch off the phone, or let's say the battery
gets really low and you just switch off the phone for eight hours and then you switch it back on, the battery is still gonna be low you know so i think it's really good comparison with
lyme disease you know, you can't sleep it off like at first that's what I was trying
if you're tired you sleep right and but that doesn't work with lyme so I don't want
to share too much like what I am doing to treat lyme because I don't think it's right to just say oh i'm doing this, try this and and you'll be good you know because it can be very
dangerous you know, I think that every case has to be looked individually and together
with a doctor, I don't think it's, I don't think it's a good idea to just try and treat yourself
on your own because there might be things that you don't know that are really dangerous you
know so like I don't want to give you like specific things that I am doing that I feel like
are helping but I just want to give you like the basic idea behind what I'm doing is
that I'm supporting everything, I'm supporting my immune system every way that I can, I have a very
strict diet, I don't eat anything with sugar so that I don't put any stress on my body
with any food allergies or just like unhealthy foods but I think what needs to be
done if these bacteria are inside of the biofilm communities or matrix that you need to dissolve
that matrix or you need to get through the biofilm so I think there are some things that can kill
the biofilm you know, that can kill that thing so that your body's immune system can go
and attack that bacteria that was hiding inside of it you know so this is
at least my strategy that we're gonna try and of course, support the
immune system in any way that we can the last thing that I want to say is that what I
have realized for me, whenever I have a flare-up it usually comes with me being, my immune system
being weak because of stress that comes from from my mental state. For example, if I am
really like upset about something or if I am going through something or I'm doing something that's
not healthy for me. I've had really hard two years with things
that were going on in my life andwhen I was in my lowest points that's when your immune system
is also so stressed, that's when you get a flare up that's when when i get a flare up, last
last spring before I went to the hospital I was in a very bad stat,e in my mental state, in
my head, I was really unhappy in my life and that allowed symptoms to come out
strongly because my immune system was weak and was not able to deal with all this
so what I want to say is that if you're you need to put yourself in a good place if you're
unhappy with your life, you need to make life changes that are gonna make you happier. If you're
in a bad situation, you need to get away from that bad situation whenever possible you know. Like me
for example, I had to quit my job, I had to distance myself from certain people you know
because they were not good to me, they were not good for my mental health you know and it
was very tough decisions, it was very hard for me to do but at the end of the day, you need to make
those moves for your mental health and also to fight with lyme you know because if you're
struggling internally like your physical bodies can't heal like you need to put yourself in a good
place and also like with your relationships it can be so straining to be in a relationship
with a person who is constantly ill or who is going through lyme disease, it puts a big strain
on your relationship and you need to understand that it's not only hard for you
but it's also hard for people who are right next to you and who love you and who care about
you and who want the best for you and you have to understand them as well that they didn't sign
up for this, they didn't sign up, they didn't know that this is gonna happen and it's a lot of stress you know and there can be times when they're not going to be
supportive because it is just too much for them and you can't blame them, like you can't blame them
because they are doing their best, I'm sure but it's just, it's a lot, it's a lot for you and it's
a lot for everybody else around you, you know so you know just don't blame them if they
can't be there for you every day because it hurts to see somebody that you love
suffer and not do so well and, you know... okay I think that's it, that I
wanted to tell you if there is if you are struggling with
lyme disease I would love for you to maybe share something in the comments to read other people's stories and to share our thoughts and maybe we can support each
other and maybe even try and find solutions together or see what has helped somebody
so I encourage you to leave a comment and yeah I think it is important as
well to share your stories because it's not being talk talked enough you know, there has
lately been some celebrities who are talking about this and that is so good because
we need more awareness for this disease we need more people to understand
that it is not so easy to treat it is a very complicated disease that can ruin
people's lives, it can take away dreams, it can do a lot of bad things and I think that the
more we talk about it, the more awareness we have and the more the doctors will be looking into this
and be like, hey okay, why are so many people having problem with this if that's a simple disease that
can be treated with three weeks of antibiotics you know so if you have a story to share, I encourage
that you tell this, that you tell your story and you share it with your friends, your family
and wherever you can because more awareness means more research, means
hopefully more money and hopefully more success stories so that in 10 years or 20 years we
don't have to sit down and have this conversation you know I'm really, I really hope that this
will be true, I believe that in 15 years this is not gonna be a problem, no doctor
is gonna say that you are fine even though you have all the symptoms after the treatment, they
will try to figure it out with you the insurance companies cannot keep saying
that this is the only treatment needed for lyme they cannot keep saying that, these court cases are
gonna go, I don't know if they're gonna win or not but there will be another ones if not, if they
lose this time, and sooner or later there will be a better treatment protocol for lyme and
people don't have to go through what me and you went through if you are the one that
is going through that so share your stories stay positive, find people who are struggling with
the same thing because they will be the ones to understand you. Your husbands or your family, you
can tell them but they don't know what you're going through because they don't have it, you
know so find people who have it, who have been it is amazing how many similar stories we have,
doctors saying you're fine, doctors giving you treatment saying this is the only treatment,
your insurance is not covering anything else you're being told it's in your head, you
know all these things like there are people who are going through the same thing
so find them and find support from them okay yeah that's it for today I'm really good that
I get to share this and talk this and I really hope that it resonated with anyone listening to
this if not at least I gave my try and yes I'll keep fighting, sooner or later I'm gonna
beat it, I don't know if it's gonna be tomorrow, next week or next decade, I'm not
gonna give up and don't give up, you got this okay! I leave you with that, thank you so much for
listening and I'll see you on the next one!
