Experiencing Psychosis: James King

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PSYCHEDELIC MUSIC TINKLY MUSIC My diagnosis is depression with psychosis. That means I have delusional thoughts sometimes and hear voices in my head. And that's sort of meant that I've not lived in the world. TINKLY MUSIC CONTINUES I was frightened of people and their reactions to me, and... I was very much at home... in my own room, in my own space, in my own mind. And that's... that's really debilitating. Mm. TINKLY MUSIC CONTINUES It means that a lot of the time, I'm... I'm quite paranoid of,... um, things that may or may not be going on in the community. It's very distracting. It's very distracting. I'm getting it now. TINKLY MUSIC CONTINUES The voices are telling me things that may or may not be happening about, you know, this interview. And it's not very helpful. Not very pleasant stuff triggers into, sort of, the paranoia and... and what have you. Director: Do you wanna have a break and put things into perspective? James: I might have a smoke, yeah. Mm. TINKLY MUSIC FADES VOICES WHISPER INDISTINCTLY WHISPERS ECHO James: Sometimes you can't separate reality from... the delusion,... and that's when it is at it's peak. For example, with the, um,... camera crew, was thinking that they're getting footage on me for some purpose to use against me. Um, and the questions are going around in my head, and voices are saying they're trying to hurt you and trying to confuse you. DISORIENTATING MUSIC MUSIC CONTINUES The voices, I think, see themselves as being protectors of me, but actually, they stop me from doing things. MUSIC CONTINUES MELANCHOLY MUSIC This exhibition's, sort of, a culmination of the last five or six years of my work. It's a bit of a retrospective. It really follows the journey that I've taken emotionally, mentally, intellectually as an artist and as a human being. I guess you could split the works in two. There's a lot of emotion in the earlier works, a lot of anger and a lot of, um, emotional turmoil. The works I've done more recently are more contemplative,... aimed at thought-provoking rather than yelling at people. I've got works in here that actually yell at you. Yeah, this is a painting that was done in 2010. It's done with house paint and, um... as a base, and then spray paint is for the dialogue. Um, it came to me when I saw something on the news about people, Greenpeace people, throwing themselves at Japanese whaling ships and risking life and limb. And I thought, 'Why doesn't anybody risk life and limb for me?' MELANCHOLY MUSIC CONTINUES I started painting while I was in the Auckland Mental Health Unit, as a way of trying to get myself out of my head. I found it helped to try and mitigate against the depression I was in, the voices that I was hearing. All around me were black dogs, sitting on the bed, sitting on the floor, lying on the cupboard. And the dogs were talking to me, so it was an audiovisual hallucination. And that was even more frightening. And I was tired and hungry and emotionally fraught and going through this depression and this psychosis, and I didn't know what was happening. So I painted that. I had to get that out of me. Once I got out of hospital, it's like being plonked back in the ocean or being thrown off a ship. You know, when you're in hospital, everything's done for you — your food, your meds and all of that — but once you get out of there, you're left to your own devices again. And so I came to Toi Ora, and my art came alive. It's probably the most effective therapeutic tool I have in my arsenal now. BIRDS CHIRP Born in '75, I was taken off my... birth parents and made a ward of the state,... was fostered until I was 8,... and then adopted into an English family who'd emigrated from the UK. My birth parents were both drug addicts, and they both spent times in and out of jail,... so probably couldn't look after me as well as they should've. CONTEMPLATIVE MUSIC I was 7 when I first heard voices and again when I was about 11,... after an abuse, situation of abuse. And that holds really bad memories for me and gives me nightmares,... and often I relive it... as part of a PTSD. CONTEMPLATIVE MUSIC CONTINUES BIRDS CHIRP Today I'm getting my injection. After that I have my psychology appointment. Then after that I start my new job. Morning, James. How'd you get here today? Uh, I got a lift. Most people just get up, have breakfast, have a shower, and then go to work, and I've gotta do all this other stuff to start me off on the day. BIRDS CHIRP The injection is, um, of olanzapine. That'll be or that helps reduce the level of intensity of the voices I hear. Well, olanzapine is the antipsychotic — um, intramuscular, um,... form of the oral drug olanzapine. And it's, um... it is primarily for,... um, uh, thought stabilisation, if you like. It's an antipsychotic. Without it, as James states, the voices can overwhelm him. So can paranoia. So those two things together can actually lead James to become quite psychotic, um, or very disturbed, and he then stops sleeping. Um, and then with lack of sleep and overwhelming thought processes, it's not very long before someone actually starts, uh, collapsing. All right, James. It's time for the actual injection. Really, the kudos goes to James on the fact that he's opting to take this injection. A lot of clients would never, ever opt to have an injection. Most people want off it. It's cleared away some space in my head to focus on other things, more positive things. It means I can look to start the day and... and go forward, yeah. Director: Awesome. And what is today bringing for you? Well, I start my new job today, and, uh, so that's pretty exciting. That's the main focus. James, how are you feeling? Yeah, good. Good. All right. Let's go grab a coffee. Done. - Yep. Thanks. I haven't been good at meeting the world on the world's terms. I've sort of hidden away from it. So to... So to do this and get my medication done and, you know, have breakfast and those sorts of things, just doing what normal people do, and I guess I'm getting a bit more normal. SLOW MUSIC This'll be my first... proper job in... 10 years. BIRDS CHIRP When I think, 'Where's that 10 years gone?' It's gone into me being really sick, but I'm really excited about taking... taking the plunge. DOORBELL RINGS SLOW MUSIC James. How's it going? Hi. Good, thanks. Come in. So, I'll just read through a little bit of the job description. So I guess it's kind of like to fill in the gaps of the organisation and, kind of, the strength that you bring to the organisation and how we, like, complement each other. - Yeah. - Um, so it's the community and media engagement manager. Um, so focusing on our relationships with our stakeholders, particularly, like, the community that we serve, um, and 'cause of your experience with media and producing, and production and media stuff and radio shows, I thought it'd be cool to, like, grow that. - Yeah. Um, so but also, kind of, there's a bit of comms aspect to that as well, um, so you'll probably work closely with me in terms of, like, communication. That's it so far. What's that one? This is the relapse-prevention plan that I came up with with my psychologist. Really? For you guys to have a copy of it. Oh wow. Is this what you guys work on? Mm. Yeah. Part of our core business is to run forums for the community and for people, um, using health services. And we just, kind of, come up with different topics that, um, are big issues in the community that affect people, especially vulnerable people. Um, and we, kind of, yeah, raise these issues and discuss them and talk about solutions that we can... we can come up with as a community to support each other. We're all about people who have lived experience, so having someone like James, who's, like, kind of, has a really intense past and brings all that knowledge. It's basically about strategies to keep me well, like taking medication consistently, attend my appointments and therapy regularly, taking insulin and things like that. The stigma that mental-health labels have on people,... um, and the way the general community look at... looks at a person with mental illness — sometimes is frightening, sometimes is dangerous, sometimes is unintelligible — uh, those are, sort of, some of the, um, ideas that come through the media. And we really want to counter that, to prove that people with lived experience are full people, uh, and are dynamic in their own right, rather than being doped up, drugged-up mad people. We need that, like, really really badly. So I think, yeah, James is, like, well suited to the role. PHONE RINGS OK. Thanks. Bye. So, that was, um, Breakfast show, um, tomorrow morning, asking if we wanted to go on to talk about the balance between, like, people's individual freedoms and rights. 'Cause we can't lock people up forever or keep them, yeah, segregated forever, but then also, like, how do we keep people safe? That would be at, like, at 7am in the morning. - I know. Are you going in? I was gonna— I'll come with you, and then do you wanna, like, be the spokesperson for it? - Yeah. - I'll just be the support person. Do you wanna maybe meet here really early and I take us in, or...? - Yeah. - Will that work? - Yeah, that works. - OK. James is well-suited to the role. Always nervous, anxious. CONTEMPLATIVE MUSIC I'm a seething pile of... massive worms inside. MUSIC CONTINUES With mental health particularly, it's always of balancing patient liberties with safety of the person and family and the public. So it's a constant challenge. We've got a saying in mental health at the moment — instead of asking people who use services, 'What's wrong with you,' we have to start asking, 'What happened to you,' to understand, like, what brought you to this point in your life where you're in crisis? Instead of being, like, oh, this is just, you know, something... you're just like this, sorry about it, let's try to fix you; it's, like, well, actually, you're a... yeah, a person. CONTEMPLATIVE MUSIC CONTINUES Although the public demands the standardised uniform care of excellence across the country, you've gotta be aware that not one size doesn't always fit all when it comes to mental-health care. When it does go wrong, it goes spectacularly wrong. That's what the media likes to pick up on, and that's what they're commenting on a lot. Intercom: Hi, security - Hey. I'm here for the Breakfast show. - OK. Uh, what's your name? - Uh, Kieran. - I'll let you in. No worries, mate. Thank you. I'd organised with James to meet him at, um, 6am at the office so we can get ready, um, together and go together, but... (CHUCKLES) he didn't turn up. Could be medication side effects. That's really common. CONTEMPLATIVE MUSIC CONTINUES (CHUCKLES) I just got a message from James — 'Sorry. Alarm didn't go off.' (CHUCKLES) So that wasn't as dramatic as I thought it would be; he just slept in. (CHUCKLES) Oh well. From Changing Minds, a non-profit organisation focusing on mental health, we're joined this morning by Kieran Moorhead. Good morning to you, Kieran. Good morning. The statistics I've been looking at, there is a spike in the number of people seeking or requiring mental health services. Yeah, so, um, demand for mental health services has gone up 21% over five years. Um, and the funding of mental-health services hasn't kept up with that demand at all. Just, yeah, there's always gonna be not enough, really, but it's a matter of how we can, kind of, use the funding that we have better. Uh, I think that's kind of the focus of the government at the moment. CONTEMPLATIVE PIANO MUSIC I missed the Breakfast show today. I had my injection yesterday — that always wrings me out. Um, and I didn't sleep very well, which means I slept through my alarm, basically, is what happened. Still no excuse. (CHUCKLES) And I'm really sorry. If I had have made it, we would have been talking about patient rights and how being in hospital impinges on those rights, the rights to move around and stuff and the freedom of association and things like that. People think that, um, when you're in a psychiatric ward, you're locked up for being mad, whereas there are a whole bunch of reasons why someone is in a mental health unit. And, um, there are a whole bunch of reasons why people's freedoms to come and go as they please, you know, should be protected. CONTEMPLATIVE PIANO MUSIC CONTINUES And this is my partner, Louise, bringing us nice cups of tea. Hello. (CHUCKLES) Here. This is our best bone china. Thank you. (SLURPS) We met at Toi Ora,... and Louise immediately fell in love with me. I took my time. I didn't wanna be an easy catch. We've got our art in common. I think we have the same sense of social justice. He has a sense of flair... in the way he presents himself to the world. He's not bad on the eye. (CHUCKLES) (CHUCKLES) I feel like he is very capable of doing this job that he's been offered, and very proud of him, that he's been offered this position. It shows, you know, obviously, how much other people think of James and the confidence they have in him and that I have in him. And I think he's really really capable. And I think he will succeed. Thank you. Mm. Mm. That's really nice. Yeah, I get a lot of support from Louise, which is one of the reasons, I think, I've stayed out of hospital for the last two years is because of the support she's provided me. You know, she's a little tower of strength. I really appreciate that about you. BIRDS CHIRP This is Kingseat, the old hospital for, uh, people who suffered mental illness. I just live a couple of steps, uh,... over to the back of the, uh... the property, where I've been for about 18 months now. It is an unnerving sort of spot. When you drive in at night and you drive up the long driveway, and you see the big main building at the end of it, it's quite intimidating. And I can imagine people who were coming here back in the day would have been terrified of what the place holds. To be locked away is the key thing, to lose your freedom so you can't go anywhere. And I guess this is why the place was so isolated, to keep you here. And when they talk about people leaving, they talked about them escaping. Whereas this was a place supposedly for healing, and you've gotta wonder how much healing went on with the, sort of, Draconian mechanisms that were used to keep people here. You've gotta wonder. My first hospital experience was in Wellington, at the Wellington unit. Um, I was studying journalism at the time, and I had a massive breakdown, where I tried to commit suicide by taking an overdose. My relationship had broken up, and things weren't going well at work. I was put in hospital as a result of that. And it was the first time I'd come into contact with people who were very unwell, so that was quite scary. POIGNANT PIANO MUSIC I think being homeless was the worst for mental health and... and health. I guess I chose to be homeless for... for reasons that aren't that clear, really. It was just that I slept out on the street a couple of times, and then it became a habit. And it was something that I did full-time. A lot of people who are homeless do have mental-health needs and are ... in and out of the system. I don't know if my trousers can do it now, but... POIGNANT PIANO MUSIC CONTINUES So, this is where I lived for a while,... back in 1999, 2000. MUSIC CONTINUES I lived here for about three or four months. It's right next door to Mt Eden Prison, um, and the train. So, I went to sleep up there, just on the edge. So, yeah, I tucked myself up right at the back of the... the, um, bridge there. I kept my head down. I didn't wanna know anybody, so I didn't converse with anybody, didn't talk to anybody. You never sleep well, actually, when you're homeless, 'cause it's too cold or too hot or too exposed. And you're frightened people are gonna come up and beat you up. I thought about how shit life was. That's what I thought about when I was up here. Oh, the voices would talk about passers-by, and that everybody else's life is going really great and my life isn't what it should be. POIGNANT PIANO MUSIC CONTINUES MUSIC CONTINUES The first time things started to change for me was I went to the, um, Pakuranga Library. And I'd seen these pamphlets for AA,... and I,... um, picked one of them up and... looked through the list of 13 things that make you an alcoholic, and I think I was 12 of them and a bit iffy on the 13th. So I decided — there was nothing else to do that evening — I decided to go to an AA meeting. And that's where the start of coming back, I guess, happened. MAJESTIC MUSIC So, we'll have the catering from there. We'll set up a couple of tables. - OK. And just afternoon tea? - Just afternoon tea, yeah. - OK. Yep. One of the first jobs that I have, uh, in starting Changing Minds is the role of organising the forums and panel discussions for the organisation. That's where we get members of the community to come to a talk, where we discuss issues facing mental health and people with lived experience of mental health. MAJESTIC MUSIC CONTINUES I'm in a much better position than I was. I do have a place to call home. I do have supports around me — clinical supports and the supports of friends, and my work is a support to me now. MAJESTIC MUSIC CONTINUES MUSIC CONTINUES Director: How many people are we expecting? James: Well, 30... 30 people have RSVP'd. Um,... and there may be more — I don't know. I'm sorry it hasn't printed out very well. Our printer's on the blink. - Hi. - Hello. - How are you? - Good, thank you. And you? - Good. Yeah, pretty good, thanks. - Hello. - Hi. - Hi, ya big spunk. - I'll pass you over to James. - Thank you. And welcome to our first forum for the year. Um, Changing Minds is very proud to have presented to you our experts in housing and housing-related issues. I'd like to start with Edit Horthvat... Hor... Horvath. Horvath, um, from CHAMP. Tell us a little bit about CHAMP. It's gratifying being here and doing it, and I've got opportunities and chances to do things I would have missed on otherwise. So, you know, I'm grateful for that. It feels somewhat bittersweet, standing here today and welcoming James into his new role as community and media manager at Changing Minds. I would like to acknowledge and thank James' partner, Louise, for her support of James. After reviewing our strategic direction, it became increasingly clear that we had an amazing, but underutilised resource, James. LAUGHTER It goes without saying that, um, there's no one better to be part of the operational team here at Changing Minds, to help lead those brave conversations about mental health and addictions in Aotearoa. Take him across, and the whanau will pick you up on the other side. It's monumental, really. It's been 10 years since I had full-time work. With my partner supporting me, I haven't been in hospital for two years now, so it's a big deal to... to move into this. To all the people who've come to support Taimi and myself, I thank you very much, and hopefully, I'll be able to do justice to the job. Thank you very much for being a part of the Changing Minds vibe. It's, um... It's really important and special. Thank you. CONTEMPLATIVE MUSIC Louise: I know that he's more than capable of doing this job; it's everything else that he faces that stands in the way, potentially. But I think if he can gain... regain some self-confidence and self-esteem in the position, then it'll, sort of, hopefully, spill over into other parts of his life. If I could take away everything difficult for him, I would. Sometimes you go forward two steps, and then you go backwards two steps, but that's OK as well. You know, it doesn't have to be perfect; it can just be whatever it is. When you've been unwell for so long, that becomes the norm. And so to break out of that, you do need a bit of bravery and a bit of... well, a zest for life, a desire for life, and that's what I've got now. LAID-BACK HORN MUSIC
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Channel: Attitude
Views: 97,974
Rating: undefined out of 5
Keywords: AttitudeLive, Disability, Depression, Mental Health, Mental Illness, In My Mind, James King, Journalism, Radio Producer
Id: QX7eV8Q9pKo
Channel Id: undefined
Length: 28min 47sec (1727 seconds)
Published: Sun Aug 14 2016
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